Posted by MARK AND NANCY on March 29, 2003 at 22:43:38:
In Reply to: my neice, my son posted by missy on March 27, 2003 at 17:48:14:
OUR DAUGHTER MANDY WAS DIAGNOSED WITH MOYAMOYA IN DEC. 2002. SHE HAD SURGERY ON FEB. 26TH AND MARCH 5TH 2003. SHE HAS HAD SEIZURES IN ABOUT JAN. 2001 SHE HAD AN EEG AND WAS TOLD SHE HAD NON EPILEPTIC SEIZURES, FROM EMOTIONS AND NERVES. WHEN MANDY GOT SURGERY THE SURGEON DR. STEINBERG AT UNIVERSITY OF STANFORD SAID TO US YOU REALIZE THOSE SEIZURES A YEAR AGO WERE THE ONSET OF MOYAMOYA, WE SAID WE REALIZED THAT. WE CANT SAY THIS IS DEFINATE IN YOUR CASE BUT I STRONGLY SUGGEST LOOKING INTO IT. ITS NOT AN EVERYDAY THING BUT THERE ARE CASES OF 2 OR SOMETIMES 3 IN A FAMILY WITH MOYAMOYA. YOU CAN GET AN MRA AND OR AN ANGIOGRAM AND SEND IT TO DR. STEINBERG AND HE WILL LOOK AT THEM AND GET BACK TO YOU. WE ARE WILLING TO HELP YOU IN ANYWAY WE CAN. WE WILL ANSWER ANY QUESTIONS YOU HAVE.MANDY HAD 3 MAJOR STROKES BEFORE HER DIAGNOSIS AND HAS BEEN AND IS STILL REHABING. PLEASE LOOK INTO IT.