Posted by kevin Low on August 07, 2003 at 08:35:23:
In Reply to: Your instincts are right...... posted by Mary on August 06, 2003 at 13:30:59:
Thanks for your feedback.
Danielle is still on asprin daily. I just learned about the danger of dehdration and hyperventilating this week. I am not sure the doctors have stressed this with her parents although this diagnosis was made until recently and I don't think they know anything about it. We've learned a lot just this week.
We have sent Danielle's file off to Dr. Steinberg yesterday. I am going to try to contact Dr. Scott's office today.
I will pass be sure to pass along your offer to answer anything you can to Danny's Mom and Dad. I know they have a lot of unanswered questions.
Again, thanks to you and everyone else for your feedback. This website is a great resourse and forum for support. Best of luck to your family and I am glad to hear your daughter is making progress now.