Posted by Douglas Veronesi on August 30, 2003 at 19:37:50:
Hello people. You are here because a loved one has moyamoya like myself. My daughter had surgery on only one side of the brain, because the other side was healthy at the time. She went through surgery at the age of 9 on the right side of her brain. She made a full recovery. She even got her Black Belt in Kempo Karate a few months after the surgery. So I wanted those of you who are going through this for the first time to realize just how well these patients recover after surgery. This is providing no damage was done before the surgery. Hannah has now begun having severe headaches again, and will need a surgery for the left side of the brain. She is still 9 years old. When we are not sure, but soon. We just had an MRI or MRA of the brain last night at Children's of Boston. This web page has helped us through the devastating realization that our daughter had a disease. They did this by the online support group, and to realize what life was like after moyamoya. So the purpose for this post is to give others faith that after surgery lies a new begining with a healthy child as Hannah did by getting her black belt. She had a stroke that effected her equilibrium after surgery called a TIA. Not to be alarmed as this is normal. The operation from Dr. Scott takes 3 months for the new artery to find it's way to the brain. Also after surgery you see your child with their motor skills hampered, but after 3 days they get remarketably better day by day. Each day you will see a new child. I have my little Hannah back, and she is my world. A daughter is very special to a Daddy. Hannah I love you, and I just hope her story will help other moms, dads, and other children see just what they can accomplish after moyamoya. God Bless you all, and yes I know exactly what you are going through. I pray the best for your loved one with moyamoya, and for those around them. God bless. Your prayers for me in my time of need empowered me to keep my chin up. I want to give back to the new moyamoya patients. I talk to much so until next time give your child a kiss, and a hug and let them know just how many people are thinking about them.... After this I don't sweat the small things anymore.........