Posted by Tom Benson on August 31, 2003 at 19:35:06:
Hello, my name is Tom Benson. My son Timothy has gone through all the tests for moya moya, and his neurosurgeon is about 90% certain that he has moya moya. He is actually waiting on Dr. Scott to review his angio and put the icing on the cake. My son is 12 years old, and displays stroke like symptoms with his right arm and leg. I just wanted to let all of you know that reading all the wonderful stories of success on this message board has really been uplifting through this difficult and confusing time. The surgery has been explained to us by Timothy's neurosurgeon, but hearing information from people who have been through it is wonderful. Timothy is doctoring at The University of Wisconsin Hospitals and Clinics in Madison Wisconsin. His neurosurgeon is Dr. Bermans Iskandar, who is a close personal friend of Dr. scott's, so we know that Timothy is in good hands. Once again THANK YOU for making this a little easier!!!! I will keep you all posted as to our findings, but as for right now we have been told to expect surgery in the next few weeks.
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