Hello everyone

Just out of curiousity-is there anyone out there who is from the Southern New England area?  Particularly, CT?
Alice

DEAR ALICE
                 WE ARE NOT FROM CT WE ARE FROM NY BROOKLYN ACTUALLY SO WE ARE NOT TO FAR OFF DO YOU HAVE A GOOD DR IN CT OR DO YOU GO SOMEWHERE ELS MY SON JARED IS A 23 YR OLD DOWN SYNDROME YOUNG MAN  THAT NOW ALSO HAS MOYA MOYA HE WILL BE GETING HS FIRST SURGERY ON APRIL 30TH AT COLUMBIA  HOSPIAL IN MANHATTAN AS YOU CAN IMAGINE I AM VERY NERVOUS THIS IS LIKE A NIGHTMARE THAT I HAVENT YET WOKE UP FROM I HOPE THAT YOU ARE DOING WELL DID YOU HAVE SURGERY IN AUGUST THERE IS SUPPOSED TO BE A GET TOGETHER IN NJ MAYBE YOU CAN MAKE IT YOU ARE NOT SO FAR STAY WELL AND GOD BLESS
                                       DONNA

8)Hi Donna and alice I just wanted to say to Donna,
CALM DOWN!! Iknow this is a serious situation but  Dr. Sander Connolly is the best.  Pat M. just came through hers fine and I'm sure that eventually I'll need surgery and Dr. Connolly is my neurosurgeon.  Call me any time, 732-938-3038 and give jared a hug,  he'll be fine.  Don't forget saint Philomena.  I know how she helped me.

God bless you both   Tom G.  Alice I'm in NJ. pretty close. :D

Alice
My wife has moya moya, and we live in Groton till July at least.  Currently she is seeing Dr. Gorhman at Yale in New Haven.  A great neurologist who has been very open and willing to answer any questions that we have had.  We are not sure if she is a candidate for surgery yet or not, as we just started testing today.
Joe