Moyamoya.com Forum - Print Page

Moyamoya.com Forum
http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> NEW Moyamoya Video! http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1083907803 Message started by DJ on May 7^th, 2004 at 5:42am

Title: NEW Moyamoya Video!
Post by DJ on May 7^th, 2004 at 5:42am

For those of you with high speed connections, this link will probably work the best....

For those of you with dial-up connections, I hope it works ok...

We're making a difference!

Click the link below for brand new video about Moyamoya!

http://www.stanfordhospital.com/media/winMedia/wmmKrontvNeuroMoyamoya.html

8)

Title: Re: NEW Moyamoya Video!
Post by Mar on May 7^th, 2004 at 7:14am

OMG Deej... That video was outstanding!!!! I cried through the whole thing. This information here has got to be the first of it's kind to moyamoya victims and their families and it's getting out there, thanks to you! I'm so excited! This website is saving lives and making a difference. [smiley=sayyes.gif] God bless Stanford, Dr. Steinberg and you Deej. Wow, my heart is pounding.

Thank you Deej!

Love,
Mar

Title: Re: NEW Moyamoya Video!
Post by Nancy_N. on May 7^th, 2004 at 8:27am

Deej,
What can you say! He's the man the video was great if for some reason it only educates 2 people it was worth it like Mar said its getting the word out for the first time in video from a proffesional. You never stops amazing me.
Nancy [smiley=hug.gif] :-*

Title: Re: NEW Moyamoya Video!
Post by STrantas on May 7^th, 2004 at 9:09am

All I can say is - Amazing! I'm glad this is there and moya moya is getting more noticed.

-Shari [smiley=sayyes.gif]

Title: Re: NEW Moyamoya Video!
Post by Rena on May 7^th, 2004 at 1:14pm

Couldn't see the video, but I could hear the story great.
This is just what everyone needs. Getting the info out finally. [smiley=biggrin.gif]

Title: Re: NEW Moyamoya Video!
Post by DJ on May 7^th, 2004 at 8:53pm

wrote on May 7^th, 2004 at 7:14am:

I cried through the whole thing.

Me too Mar, me too!

;;D

Title: Re: NEW Moyamoya Video!
Post by ariannasmommy on May 7^th, 2004 at 11:57pm

Can't bring myself to watch the video yet. But thanks for putting it here.

Title: Re: NEW Moyamoya Video!
Post by Roni on May 10^th, 2004 at 3:03pm

Only able to get the sound on the video. Interesting to hear both women had children who were tested for Moyamoya. Anyone know what type of test is involved or where it is available? Thanks,
Roni

Title: Re: NEW Moyamoya Video!
Post by DJ on May 10^th, 2004 at 3:07pm

Roni wrote on May 10^th, 2004 at 3:03pm:

Only able to get the sound on the video. Interesting to hear both women had children who were tested for Moyamoya. Anyone know what type of test is involved or where it is available? Thanks,
Roni

Roni, my understanding is that the children had angiograms done to rule out moyamoya.

Title: Re: NEW Moyamoya Video!
Post by Roni on May 10^th, 2004 at 3:22pm

Hi DJ,
Thanks for your prompt reply. Sorry to hear there isn't something less risky than an angiogram to check non-symptomatic kids for MM. An MRI & MRA is trauma enough. Wouldn't a DNA test be a great breakthrough? We can hope it's not too far off.
Best,
Roni