I was just wondering from your experience, will Trey be taking seizure meds and blood thinners for the rest of his life?  The only time he had a seizure was when he had a stroke, hopefully those days are behind us now.  

Is there anything that we should look for or questions I should be asking the doctor?  We didn't use a specialist, just a Neurosurgeon who has had experience with the disease.

The left side has not swollen as much as the right side did.  He looks great!!!  The swelling around Trey's right eye has gone down almost completly.  No bruising yet.  The stitches should desolve when ready and we go back for a follow up in two weeks.  Trey will be having a repeat Angiogram in 6 month to a year to see the changes in the vessels.

Please give me any postop info you can that will help.  But he is doing GREAT, the Lord has had His arms hugging this baby!

Michell

Michelle,

What a great update.  GGGOOOO Trey!!!  We are blessed.


Janice

I am so thrilled for you and Trey.  Don't know much about the meds tho'.  

Way to go. Trey......as far as post-op anti-seizure medication. I am still on 750mg of Depakote per day......but, I am an adult....my neurologist, Dr. Ralph Sacco and my neurosurgeon, Dr. E. Sander Connolly want me to stay on the depakote at least through this summer.......it is an anti-seizure med and a mood stabilizer.......they will probably re-evaluate me when I go for an MR perfusion test in September and decide whether I still need the Depakote.....this is just my own personal experience so far......I truly have no idea what they will do with a one year old......it's a good question to ask Trey's neurologist and neurosurgeon.....just wanted to let you know my own experience, if it helps.....We continue to pray for Trey and are so happy that he is doing well.....Love and peace...Pat :) :-* [smiley=sayyes.gif]

ps..you probably need to get a good night's sleep after all you have been through...I pray for that as well... [smiley=sleep.gif] [smiley=sleep.gif] [smiley=sleep.gif]

I believe almost everybody has to be on some type of asprin for the rest of they're life I'm not sure if that applies to children or not. Mandy takes 325 mg. of ecotrin a day forever.
                      Nancy

Hello Michell-

My name is Christy, and i just had my surgeries in April. After surgery i had a seizure so i was put on an anti-seizure med for two months only and i will take an asprin for the rest of my life. Like Pat said everyone is different and you should check with the doctors to learn what is best for Trey, but those are my meds if it can be of any help.

I wish you and Trey the best of luck and my thoughts are with you and your little angel!

Babyblue

Hi Mitchell!

I don´t know if this helps but my daughter, who was 6 at the time of the surgery and is now eight years old is on shots of bloodthinner daily. Her doctor (and Dr. Scott) is telling us she will probably be on these shots long-term but perhaps in a future she will be able to have a pill(like aspirin) but that would be permanently.
Then again, what is a shot daily once you are well and free from symtoms? Louise gives herself the shots every day, you´ll be amazed what children can do when they grow into it like your Trey will.
All the best of luck from us in Sweden

Love,
Annica and Louise   :-*

Michell - Emily (who's three in Sept) has been on soluble aspirin since diagnosis (mid last year).  Andy