hello everyone! just wanted to let everyone know.we are making the cross country trip to have our son treated by dr Steinburg.we live in Orlando FL.we are looking forward to his experience and the facility.
also a small foot note to families that want treatment there.i made some calls and there are orginizations out there that assist familes in travel needs.we contacted angel flight and they refered us to different major airlines with programs.we were frotinate to be granted our wish of 3 round trip tickets.we want to thank angel flight and the airline thats assisting us.

That is so wonderful about the airline tickets!  Welcome to the MM website!  You will be amazed at the staff there at Stanford.  I can name over 15 caregivers that I will remember forever!  The best feeling is getting into your own room and then showing the docs that you are doing well by walking around.  I ended up only having 4 nights in the hospital  post op after each surgery.  Everyone is so nice.  I had my first surgery on 6/30 and the 2nd surgery the 7th of July.  The first surgery lasted 6 1/2 hours the second 8 1/2 hours.  The blood flow came out good.  I am at home now recovering.  I am so blessed because I had minimal side effects from them.  You will be surprised about the pain; it is not as bad as having a stomach ulcer removed!  I am waiting for the swelling to go down and regain all feeling in my left side of my head.  This should be shortly.  The best thing is that I am not at high risk for stroke anymore.  You and your family will be in my prayers.   :)Kristina

Wonderful, SBG!  Sounds like you are on the right track!  Keep up the good work!

-Shari

Hi SBG,

That's wonderful news. You're going to the best doctor in the country IMO for your son. Have a safe trip and please keep us posted. You all will be in our thoughts and prayers.

That's great information as well about "Angel Flight, Inc. That may help others in the future. Thank you.

God bless,
Mar

Anyone heard from Gigi on how her son's appointment went?

Wondering...

Hello DJ
his appointment well well.they did a direct bypass on the artery.he was out of surgury in 4.5 hours.we have a follow up visit in 6 months that puts in into February.we plan on going around my Birthday which is Feb 24.we did meet other families as well. Chris who had his surgury a day after Seans and Holly and her mom on his follow up appointment.that facility is wonderful we the parents felt like we were at home.maybe on our next visit you can be ibn the Stanford area so we can meet with you as well.

SBG,
       I was wondering how everything went, I'm so glad it went well , I knew you would love Stanford it was a great place to have to have that experience (Although not chosen to have the experience). Great news hope everything keeps going well. Keep us posted.
       Nancy