after 11 days being readmited 2 times jared is home and doing well thank god the doctors feel that his symtoms were due to an infection somewhere in his body after intravenous antibiotics he is much better i am still a nervous wreck thinking at any minute he may not be able to speck again this has surely been the worst 11 days of my life i just hope it is all behind us and his healing process will begin this whole nightmare began on march 11 but it feels like years ago if anyone else experianced anything like this after surgery let me know it also did not help that his dr that preformed the surgery has been on vacation the whole time isnt that always the way it is thanks to everyone that prayed for jared god bless

                                                       donna

Donna, I am sooooo glad to hear things are looking better! What a long rough road.I'm not sure if you got to read my post on another one of your threads but We did ahve a similar thing happen with Kathleen only it was before her surgery. She had had 2 strokes at the time about a week after the second one we thought she was having another. She got very lethargic was crying uncontrolable, wouldn't walk or talk.We took her to the ER and by then she had a fever after some blood work they said she had a very seriouse infection and did a spinal (never want to go through that again with a child!!!!).They put her on high doses of iv antibiotics. They never did find out what the infection was she just got better. We truely believe she probably picked it up durring her stay for the stroke the week  prior to it. It scared the heck out of us not knowing what it was.Continued prayers for your family and  Jareds continued recovery.Thank you for the update I've been wondering how he was doing.
Mary Grace

Sorry to hear about all your troubles and pray that things only get better. My thoughts are with you and Jared.

Christy

I do hope things settle down for you soon.  Take care of you and give our best to Jared.

Glad to hear all is getting better. I'll keep you all in my prayers.

jared seems to feel ok today a little tired possibly from all the meds thanks to everyone for their prayers and replys its great to get info from others who are in similar situations
                                                           god bless
                                                             donna  
                                   

:)Hi Donna that's just fantastic  I'm soo happy for all of you.
    Donna I don't have your number but I'd love to talk to you.  give me a call any time 732-256-4090.
take care and god bless you,  Tom Gallucci

Wonderful NEWS !!!!
Cara came down with the stomach flu today and I was thinking about your post...Jared being sick and  Mary Graces post about Kathleen being sick....so I was thinking I wonder if Cara picked up a bug while in the hospital last week...so was on the look out...but after one "vomit" moment...she seemed to get better.  I told my husband what you guys went through...and he said oh...we can't fly her back to Rochester if we needed to !!!!  Guess just will use the local hospital instead should that happens.   Thanks for posting !!!

Hugs,  Carol

Hi Donna,

           My niece was diagnosed of MoyaMoya after she complained of headache. She was 10 yrs old then. Every one was so sad and we had no clue what this disease was all about. Started reading about MoyaMoya and I was devastated. She lives in India and we did  not have enough funds to get her here, so ended up doing her surgery in one of the best hospitals in india (Hinduja hospital) she had both her left and right side surgery , they were done a week apart. Her first surgery went well and they decided to do the second surgery and the day after her surgery she had a stroke , couldn't move and couldn't talk. The stroke happened in her sleep.
She was on physiotherapy and speech therapy and by gods grace her speech has come back 87% but not full, she is still not able to write with her right hand since she had a left side stroke, is able to walk now.
I am writing her case history in order to keep you aware of the what could happen after a surgery.

The best thing is that , if you get any indications as numbness, seizures or even lip drop , get in touch with the hospital and get him checked up. There are medicines that can prevent stroke from happening if given at the right time. I only wish if we could have got any indications in my niece case.

I am really glad to know that Jared is back home. Pray for his good health and fast recovery. I feel for all the members of this message board and pray for all their family.

And I am so happy and thankful to DJ for  having created this site, which is a good site for any  infomation on MoyaMoya - thanks DJ - what a wonderful work!

Reema