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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> New Moyamoya Research Project at Columbia Universi http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1095173402 Message started by ami_CUMC on Sep 14^th, 2004 at 11:02am

Title: New Moyamoya Research Project at Columbia Universi
Post by ami_CUMC on Sep 14^th, 2004 at 11:02am

Adult Moyamoya Disease Research Study at Columbia University Medical Center
OUTCOMES OF REVASCULARIZATION IN MOYAMOYA

The prupose of this study is to examine the effects of neurosurgery on mental, psychological, neurological, and daily functions among persons with Moyamoya disease. Persons with Moyamoya disease who undergo EDAS neurosurgery and those who DO NOT undergo neurosugery can particpate in this study. For more information, contact the Investigator, Dr. Joanne Festa at 212-305-5860

Institutional Review Board (CPMCIRB) Approval Number A8920. Approval Date 8/31/2004.

If you have any questions at all please call us at 212-305-5860 or 212-305-2743. We'll try to answer everything as thoroughly as possible.

Title: Re: New Moyamoya Research Project at Columbia Univ
Post by STrantas on Sep 14^th, 2004 at 6:37pm

Yes - I am interested in more details. What would this study entail? Do you need people that live in the NY area? Any further details would be greatly appreciated. Thank you.

I had EDAS 12/29/03 and 1/5/04 with Dr. Scott in Boston.

-Shari

Title: Re: New Moyamoya Research Project at Columbia Univ
Post by dw1 on Sep 18^th, 2004 at 8:44am

Hi,

Do you have to go to Columbia Unviversity to be ap art of the study? I live in southern California. Can you be part of the study via email?

Doug

Title: Re: New Moyamoya Research Project at Columbia Univ
Post by Nancy_N. on Sep 18^th, 2004 at 9:17pm

It cannot be STA-MCA surgery?
Nancy

Title: Some general guidelines
Post by ami_CUMC on Sep 20^th, 2004 at 10:57am

Thanks to everyone for their interest!

You must be able to come to CU in New York City for assessments.

Study participants must be adults.

STA-MCA patients ARE eligible for the study.

If you have any other questions, please call us at 212-305-2743

Title: Re: New Moyamoya Research Project at Columbia Univ
Post by ami_CUMC on Sep 27^th, 2004 at 1:17pm

Thanks again for everyone's enthusiasm. Just one more point of clarification:

In order to be eligible to participate in the study, we are looking for people who have not already undergone bilateral EDAS. We are looking for people who are pre-surgery on at least one side.

On a side note, we are very appreciative at how many people have taken the time to call and inquire about participating in the study.

Thanks again!

Title: Re: New Moyamoya Research Project at Columbia Univ
Post by ami_CUMC on Mar 29^th, 2005 at 10:04am

Just an update for all of the folks who have helped out with the study. We have enrolled a significant amount of people and are now expanding our search out of New York City. We are searching for more people in the TriState area - New york State, New Jersey, and Connecticut, and Pennsylvania who are willing to come in for a 3 hour exam. Unfortunately, we can't pay anyone to participate, but you do get a copy of your Doppler Exam free of charge.

Thanks again to everyone who has signed up.

-Ami

Title: Re: New Moyamoya Research Project at Columbia Univ
Post by Seachelles on Mar 29^th, 2005 at 11:24am

I would be very interested in learning more about the results of this research. Ami, please keep us informed and updated on your study.

Thanks,
Michelle