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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> family camps for mm families http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1111076503 Message started by twinsmom on Mar 17^th, 2005 at 11:21am

Title: family camps for mm families
Post by twinsmom on Mar 17^th, 2005 at 11:21am

Hi. I have 9 year old twins who've both had surgery for MM within the last year. I've been looking for summer opportunities for them, and am not ready to send them to a camp without me. I've seen all kinds of "family camps" - week long getaways for families of kids with diagnoses like diabetes, cancer, etc., but nothing related to Moya Moya. Does anyone know of anything out there?

Title: Re: family camps for mm families
Post by CarasMOM on Mar 17^th, 2005 at 2:19pm

boy that is a toughie...I experienced the same thing...with Cara going to summer camp the last two summers especially last summer right before her surgeries...and we live in Arizona...so it was HOT. But I stick to ones where all the activies were inside in a/c and that they were aware of her condition. I remember seeing something for stroke victims but she didn't really look like she was affected by a stroke yet. So a tough spot but at the same thing constantly wondering if she was in the right environment, too. And I'm trying to figure out what to do this summer, too...now that she had her two surgeries but still has one or two TIA's daily (skips a day or two every so often). I think MM is still too rare and unknown to have a camp for it yet. I'll look around and keep you posted though.

Hugs, CarasMOM

Title: Re: family camps for mm families
Post by twinsmom on Mar 18^th, 2005 at 1:17pm

Thanks, Caras mom!! Even something not specifically for MM, but maybe brain injury or brain surgery related. It would be nice for my kids to meet some real live kids who've had even some of the same experiences they've had!! We live in a very small town, so needless to say, we're the only ones here who've experienced anything like this!! Thanks for the help!

Title: Re: family camps for mm families
Post by CarasMOM on Mar 18^th, 2005 at 7:56pm

Haven't looked yet....but just wanted to let you know I have a set of twins too. 15 year old boys plus a 17 year old boy...Cara loves her BIG brothers. If you look on the MoyaMoya Family page of pictures...you will find a picture of my family...all four kids were adopted as babies but Cara (from Guatemala) looks just like 17 year old Brandon (Italian and Mexican)..the twins are blondes. :-) I'll be researching for some camp ideas the next couple days and will post or PM you....hugs, CarasMOM