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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Article in the New York Times! http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1112093510 Message started by DJ on Mar 29^th, 2005 at 5:51am

Title: Article in the New York Times!
Post by DJ on Mar 29^th, 2005 at 5:51am

Just noticed the article from Denise Grady from the New York Times just published. Here's the link: http://www.nytimes.com/2005/03/29/health/29moya.html

You have to register, but it's free. I haven't even read it myself yet, just wanted to get it up here real quick... More to come.

DJ

Title: Re: Article in the New York Times!
Post by DJ on Mar 29^th, 2005 at 6:26am

WOW! What a wonderful article! Finally, some national attention for moyamoya!! Hopefully, this will create a buzz in the media all over the country!

Incredible...

You go Kathleen!! ;)

DJ

Title: Re: Article in the New York Times!
Post by Seachelles on Mar 29^th, 2005 at 7:01am

This is great! Wonderful article.

Michelle

Title: Re: Article in the New York Times!
Post by Seachelles on Mar 29^th, 2005 at 7:27am

If you all haven't picked up the New York Times yet, I suggest you do so. The article made it on the front page of the health section. And there are pictures that took up more than half of the front page! This is absolutely excellent! Thanks Kathleen!

Michelle

Title: Re: Article in the New York Times!
Post by Mar on Mar 29^th, 2005 at 7:51am

[smiley=sayyes.gif] Many tears here! This is a long time coming and an excellent article. WTG Kathleen! This may save lives!!

Thanks Deej! Made my day!

Mar

Title: Re: Article in the New York Times!
Post by Chelsie on Mar 29^th, 2005 at 8:40am

What a fantastic article!!! This is wonderful!

Title: Re: Article in the New York Times!
Post by CarasMOM on Mar 29^th, 2005 at 9:33am

So good to see the article as I was wondering how Kathleen was doing....last we heard from her was "she was on her way to Stanford". Jill (gotchlorine) did say she talked with her sister on the phone and that Kathleen was doing well but I was praying that all was okay with her. It is a great article...no doubt and won't be long before one of the TV shows does its story about it. Thanks DJ for posting it.

:-) CarasMOM

Title: Re: Article in the New York Times!
Post by mg12061 on Mar 29^th, 2005 at 9:54am

Thanks DJ! Great article. Thanks Kahtleen! I sent the link to a coupkle friends.
Mary Grace

Title: Re: Article in the New York Times!
Post by gotchlorine on Mar 29^th, 2005 at 5:07pm

Hey guys,

I feel like I've missed out on an entire day of celebrating with everyone! Saw the article first thing this morning, but had to attend a funeral today, so have been out for several hours.

All I can say is "wow"! What an amazing write-up! As Michelle suggested, get a copy if you don't have one - the pictures are great! And Denise did a bang-up job of writing the article. I'm excited at the ripple effect this could have, and the education it will bring to so many people. If it helps even one person get treatment before a devastating event, it will have been worth it!

Hugs to y'all!

Jill

Title: Re: Article in the New York Times!
Post by jenna on Mar 29^th, 2005 at 8:00pm

The article in the New York times ROCKS!!! this is awesome national attention!!!! And way to go again and as usual DJ you help so many people seriously!!
:D ;;D :-* [smiley=laugh.gif] ;) :)

Title: Re: Article in the New York Times!
Post by DJ on Mar 29^th, 2005 at 9:22pm

For those of you who didn't have a chance to see the article, we didn't just get an article in the New York Times... we got a 1/2 page, FRONT PAGE article in the Health/Science section! I was able to round up a few copies for myself today. Here's what it looked like...

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Title: Re: Article in the New York Times!
Post by babyblue on Mar 29^th, 2005 at 10:25pm

I thought the article was wonderful! Glad to get some MM attention especially good attention!

Christy

Title: Re: Article in the New York Times!
Post by Lora on Mar 29^th, 2005 at 11:25pm

GREAT article~

Thanks for letting us know about it DJ!!

Lora

Title: Re: Article in the New York Times!
Post by Seachelles on Mar 30^th, 2005 at 6:43am

Just wanted to let everyone know that the New York Times article from yesterday was also picked up in the following newspapers:

Wilmington Morning Star in Wilmington, NC

Spartanburg Herald Journal in Spartanburg, SC

[smiley=sayyes.gif]
Michelle

Title: Re: Article in the New York Times!
Post by Nancy_N. on Mar 30^th, 2005 at 8:42am

Unbelievable!!!!!!!!!!!! They even gave the correct info. This makes me cry its finally happening it has to have a snowball affect its already spreading, I am so thrilled I could scream. AWESOME!!!!!
Nancy [smiley=sayyes.gif]

Title: Re: Article in the New York Times!
Post by Rena on Mar 30^th, 2005 at 10:10am

This is GREAT news! And I see it is already bringing people to the site. The number of lives that can be helped by this artical is Wonderful!

Title: Re: Article in the New York Times!
Post by STrantas on Mar 30^th, 2005 at 1:42pm

This is SO, SO, SO Awesome!!! [smiley=sayyes.gif][smiley=sayyes.gif][smiley=sayyes.gif]!!!

(Maybe Oprah will pay attention now!)

-Shari

Title: Re: Article in the New York Times!
Post by mark on Mar 30^th, 2005 at 6:51pm

WONDERFUL,
My attorney gave it to me. He didn't know what he was reading. We just started talking of my family and the disease and he looked at me in amazement. Said hold that thought and went to his car to get the article. He was mesmorized as he read the article. It just caught his attention. We said at the same time who would have ever thought that there was something as rare as this and then to meet someone who has encountered it in a very small town.
My first 2 calls went to the doctors that first saw Mark.
I think we should all send 10 or 20 copies to doctors and news stations. Any thoughts.
DJ this site has brought all of us together in a strange sad way. But thanks, and thanks to everyone who stays together on this site. It is great news and hopefully many many people will benefit. Doctors need to know!
Ron

Title: Re: Article in the New York Times!
Post by CarasMOM on Mar 30^th, 2005 at 7:18pm

Thanks DJ....for putting it online in photo !!!!...the picture looks GREAT....but the title in my opinion is definitely EYE CATCHING !!!! Perfect choice of words..wow..wow....almost a perfect T-shirt line, too. And...of course I didn't get to run out to the local Borders Bookstore to get my copy....I had to squint tightly to read the line under the picture...made me cry...the one of Kathleen going off to surgery and her hubby wiping tears away...I remember my feeling when I went in the operating room with Cara...all the machinery, equipment...and kissing her goodbye after they put her out. :) CarasMOM

Title: Re: Article in the New York Times!
Post by Seachelles on Mar 30^th, 2005 at 7:19pm

Hi Mark!

I've already sent the article and a link to this website to the Washington Post, our local paper here in Fredericksburg, VA, a paper back where I'm from in Harrisonburg, VA and the local ABC affiliate in Washington, DC - WJLA. Haven't heard back from any of them yet. I'm also working on some other coverage with some friends I have that work at tv stations or newspapers.

Michelle

Title: Re: Article in the New York Times!
Post by Seachelles on Mar 30^th, 2005 at 10:11pm

The New York Times article was picked up 8 hours ago in the International Herald Tribune out of France.

Michelle

Title: Re: Article in the New York Times!
Post by AndyMac on Apr 4^th, 2005 at 6:29pm

Published in the International Herald Tribune here in the UK too - great international coverage!

AndyMac

Title: IRe: Article in the New York Times!
Post by triciab on Apr 4^th, 2005 at 8:36pm

DJ:
Thanks for posting this article, it is wonderful. Amanda has an appointment with her surgeon next Monday, at the Hospital for Sick Children in Toronto, I am going to bring a copy for him to read. I don't think we can buy the New York Times where I live.
Tricia

Title: Re: Article in the New York Times!
Post by mark on Apr 4^th, 2005 at 9:16pm

Hi all,
I picked up a bunch of the NY Times and will take them to Stanford at the end of this month. Mark has his 3 month checkup. I also took the article to a document center and had it laminated. It should look pretty good when we walk into Dr. Steinbergs office!
Ron

Title: Re: Article in the New York Times!
Post by PatM on Apr 5^th, 2005 at 9:06am

Tricia

In order to get a reprint of the NY Times Article, you can go to NewYorkTimes.com, register for free and , for a small fee, you can access a reprint. The Times only leaves the articles on file for 7 days; unfortunately, I was away and did not see the article until late Sunday night (APril 3rd) (my dentist left a message for me on voice mail). I wanted to reprint the article, but by Monday morning, it was in the archives........Good luck with your visit to the doctor next week.....our prayers are with you........God Bless you and your family, Pat

Title: Re: Article in the New York Times!
Post by Seachelles on Apr 5^th, 2005 at 10:06am

Tricia,

I may be able to get a copy of the paper if you are interested. I'm going to go raid all of our papers here at the office and see if I have any more of them.

If so, I would be glad to send you the section it appears in.

Michelle

Title: Re: Article in the New York Times!
Post by LA on Apr 6^th, 2005 at 2:28pm

A MILLION PLUS THANKS FOR THE NY TIMES ARTICLE.

I had my first stroke in '99 and bypass surgery with Steinberg in 2000. At that time there was little known and less support. This article brought tears of joy, delight, recognition and more joy --- Thank you thank you, Thank you.

I have emailed it to everyone I know: family, friends, Making Headway (group for tramatic brain injury survivors and prevention in Northern Calif.) and other brain injury associated groups, doctors, everyone!!!!!!

Again THANK YOU

Love, LA

Title: Re: Article in the New York Times!
Post by debs on Apr 6^th, 2005 at 9:04pm

THANKS FROM ANYONE WHO HAS SUFFERED MM IN THE PAST, PRESENT, AND ESPECIALLY THOSE WHO WILL BENEFIT IN THE FUTURE!!! I'm going to my local library tomorrow for a hard copy of this wonderful article; I've mentioned it to 3 local docs & am going to make copies to send to local hospital stroke groups & whoever else I can think of to get the word out!!! THANKS TO YOU WONDERFUL MM FAMILY!!! ~~deb

Title: Re: Article in the New York Times!
Post by gilberttl on Apr 9^th, 2005 at 12:52pm

Hey all! I haven't been on in a while-school and kids are keeping me busy, but the article is great! I just read it this morning, and I like how it explained every step in the surgery. Since I was "out" for my surgery, I wondered about what all took place after I was put under. This article really explains it in detail, and I think it's great coverage for mm and the great work Dr. Steinberg and Stanford are doing. It's been over a year since my 2nd surgery, and I have had no symptoms/problems since! Thanks DJ for putting this article out there for us to see! Tricia :) :) :) :)

Title: Re: Article in the New York Times!
Post by emma on Apr 10^th, 2005 at 2:53am

I saw the article on the internet. That is a great article isn't it!!!!
I only wish it was in an Australian newspaper as there isn't much awareness over this side on the world, but a great new article anyway,

Emma : :)