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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> It's Official:Stanford http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1112962675 Message started by cubbie on Apr 8^th, 2005 at 8:17am

Title: It's Official:Stanford
Post by cubbie on Apr 8^th, 2005 at 8:17am

;;DHello Everyone

I got packet in the mail last Sat. and my flight itinerary on Tues.I will be there May 1 to May 16.

I would like to thank the people at this site for loving support and information that has taken this 10 month Journey to Stanford.
I would also like thank staff at Stanford for going to great lengths to make this happen

God Bless you and look forward meeting any at Stanord
Kevin

Title: Re: It's Official:Stanford
Post by LisaH on Apr 8^th, 2005 at 9:53am

Kevin,

I am so thrilled that it's FINALLY coming together for you! [smiley=sayyes.gif] I know it's been a long and frustrating road for you.

Having surgery myself this coming Wednesday (13th) and while, unfortunately, Stanford didn't work out for me (the whole Medicaid/Medicare thing), I am glad that someone made it through all the red tape and bureaucracy. Hopefully, when both of us have recovered from our surgeries and feel better, we can really work on changing the way Medicaid and Medicare handle MoyaMoya.

I'll be thinking and praying for you Kevin! [smiley=hug.gif]
Lisa

Title: Re: It's Official:Stanford
Post by gotchlorine on Apr 8^th, 2005 at 12:38pm

Hi Kevin,

That's wonderful that you'll be heading west in May! You'll be in such incredibly good hands with Dr. Steinberg and the Stanford staff!

We live in San Jose, just about 30 minutes from Stanford. I don't know who you're coming out with, but we would love to be of support to you while you're here. You may have read it on this site, but my daughter Tara (18 ) had her surgeries with Dr. Steinberg last June. We are very familiar with the surgery process, and have become passionate about helping people not feel like they are going through surgery alone. It's a heck of a way to make new friends, but we are loving meeting people who find their way to Stanford.

Anyway, I hope you're doing well, and will look forward to talking with you!

Hugs from California,
Jill

Title: Re: It's Official:Stanford
Post by Seachelles on Apr 8^th, 2005 at 1:27pm

Kevin,

As you know, I too will be in Stanford while you are out for the first part of the week. My brother and I plan on coming to the hospital on Wednesday morning for your first surgery. Let us know if we can do anything else for you.

Michelle

Title: Re: It's Official:Stanford
Post by STrantas on Apr 11^th, 2005 at 9:05am

Good Luck, Kevin! We'll be thinking of you!

-Shari

Title: Re: It's Official:Stanford
Post by Nancy_N. on Apr 11^th, 2005 at 1:42pm

Kevin,
I'm sure you will be pleased with Stanford Dr. S is the best. Good Luck and keep us posted, your lucky others will be out there for you it helps a very lot. D.J. was there for us and it made all the difference in the world, Jill wouldn't let you be there alone anyway. Great job youv'e done Jill! Take care.
Nancy

Title: Re: It's Official:Stanford
Post by mark on Apr 11^th, 2005 at 4:51pm

Kevin,
You'll be in great hands. We are going back the same time for a follow-up with our son Mark. We do you live. We are from Upstate New York. Hopefully we'll get a chance to meet. If we can answer any questions please don't hesitate to ask. There is a lot of support here and you will get all the support you need.
Ron and Lisa Rowland