Hi
My son had surgery done in Dec in boston. He is now living here in florida We had to see a neurosurgen and a neuro dr  because my son started having seizures a month ago. They put him back on his meds had an MRA and an MRI done is showed a white mass around the stroke that he had last year. The new dr thinks it might be a viral of some sort so he ordered alot of blood work. Has anyone had seizures that far after surgery? I am so confused The MRA didnt even show that the new vain has even grown.I know that it can take 6-12 months to grow but instead of getting better his days are worse. Any insight would be great I am so confused

Hello, only comment I could have, is our daughter Kelsey, had the surgery in Boston also, and had seizures 4 months after the surgery...    I'm no expert, but I believe seizures are quite common after the surgery, or any kind of brain trauma for that matter.. Hope that helps a litte, I';m sure you will get many more responses on this.... good luck

Lynnepat,
                    My daughter Mandy had a siezure 2 years after her surgery in Stanford, it kind of blew us away too. They said its from so much scar tissue in the brain from surgery and what not. Unfortunately it does seem to be a bit common to have seizures with this disease, but like everything every individual case is different.
                            Nancy

Tyler had seizures 3 months post surgery. It scared the crap out of me, he hadn't had any seizures for months before his surgery.

Rena

I had seizures up to a year following.  Kept changing antiseizure meds and now have about 2/year.  Carbatrol workes best for me.  It is a high dose (1000mg day) but it works

Having seizures after surgery makes sense...but I had not thought about it until now.  To those of you who that have had seizures since your surgery, what type of surgery did you have?  I am having the direct bypass surgery at the end of the month.  Should I expect to have seizures if I have had them already?
Stephanie [smiley=huh.gif]

My brother Jared had 2 EDAS surgeries last year, and never had seizures before that, that we know of. Last night in the car, jared started to fall asleep and it looked like his body kept jerking. When i called his name, he answered me, so he wasnt unconscious, but then it would happen again. I took him straight to the emergency room, and they said it sounds like a seizure. for those of you that have had seizures post surgery, do you lose consciousness? (my brother also has down syndrome so its hard for him to explain how he feels sometimes.)

Jaridsis2,
               Mandy has had 2 different kinds of seizures one kind a year before her diagnosis and another kind 2 years after diagnosis and surgerys and both kinds she was totally unconsious her eyes on the after surgery one did open but she couldn't here us or respond she couldn't control any of her own body not even her neck to hold it up, she came out of it in about 15 or so minutes I think I was so worried trying to dress her for the hospital I'm not for sure the exact time. I don't really know if its possible to have a seizure and be consious all I can tell you is of our experience. Sorry.
                      Nancy :-/

From what I've read, yes you can be conscious during a seizure, you don't always lose consciousness. I also remember reading that there are alot of different types too. They’re divided into two categories—focal seizures and generalized seizures, and so many different types in each of those two categories, so in some cases, you may never really know what type of seizure you had or why they even occurred. A seizure is just sudden simultaneous, contradictory signals from your brain cells, and that could be caused by many different reasons for each person.

[smiley=twocents.gif]

Mar

My daughter, Daphne, had epilepsy way before her moyamoya diagnosis or surgeries (started at 3 months old).  She had something called infantile spasms (also known as West Syndrome).  She never lost conscousness during her seizures.  In fact, she often cried during them  and looked scared  :(

She also had partial seizures during her second stroke, where parts of her body would twitch on the side affected.  She was very awake and alert during these seizures.

Thankfully she hasn't had any seizures since her surgeries *knock on wood*.  In fact, we are praying that the surgeries cure her of her epilepsy.

I know this isn't exactly related to the original post, but I wanted to let Stephanie and others know that not only does the surgery often not cause seizures, in some cases it can actually cure seizures.

Jenny

Jenny, thank you for the reassuring words. :)  I have only had one seizure, but I really worry about having another one, especially b/c I am driving again.  

I frequently have focal seizures in my right hand.  My fingers pulsate towards my palm.  Sometimes the seizures spread to my entire hand and even arm. During these seizures I am completely aware of what is happening and my surroundings.

Jaredsis2, I would do some research on the Internet about different types of seizures, b/c Mark is correct...one can remain conscious during a seizure.  Also, if it turns out that Jared was having focal seizures, I would not take that lightly; for as you will read, focal seizures can spread and the more seizures one has the more they tend to spread.  What I mean is that a focal seizure can become a generalized seizure.  I hope this is helpful, even if it is a little scary. :(
Jared and your family are in my prayers.
Stephanie