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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Polymiocitis and MM http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1114987993 Message started by alamo7300 on May 1^st, 2005 at 6:53pm

Title: Polymiocitis and MM
Post by alamo7300 on May 1^st, 2005 at 6:53pm

I was diagnosed with MM in 1987. In 1992, I was diagnosed with polymiocitis (muscle inflammation causing weakness, only in my legs). Doctors I am seeing now are wondering if there could be some correlation. Also, this past July I was found to have a spastic coronary artery. My cardio Dr, is perplexed by it and is wondering if there is a poly/MM correlation. I have 3 rare conditions, you think I could hit the lottery with these odds. :-/

Title: Re: Polymiocitis and MM
Post by kotipup on May 1^st, 2005 at 11:46pm

Hi... I am not sure about polymiocitis and Moyamoya, but I would not be surprised, at all, if you found out the two were related.

My daughter also has a number of "rare" problems that seem to be moyamoya related. First, she has a heart defect called coarctation of the aorta, where the aortic arch of her heart was thickened/narrowed (she's had surgery). She also had a rare form of epilepsy, called infantile spasms, which probably was a result of the decreased blood flow to the brain. She also has some unusual eye findings that we think might be moyamoya related.

I've seen research on moyamoya being an autoimmune disease, which could go along with the muscle inflamation. Also, my daughter's doctors are investigating her elastin gene... mutations of this gene can cause a number of problems throughout the body. So, whatever the pathology of your moyamoya... it could be the same pathology of your other health issues.

Jenny

Title: Re: Polymiocitis and MM
Post by alamo7300 on May 2^nd, 2005 at 8:59pm

Thanks for the info Jenny, I will run this by my Dr's. My prayers are with your daughter and you.

Chuck

Title: Re: Polymiocitis and MM
Post by Mayhem on Jun 14^th, 2008 at 3:29pm

This thread was created by my brother three years ago. He has since had a massive stroke and has been in a vegetative state for eight months.

Title: Re: Polymiocitis and MM
Post by gotchlorine on Jun 14^th, 2008 at 3:46pm

I am so sorry to hear this about your brother, Mayhem. Had he had surgery/ies for his moyamoya? Have the doctors given a prognosis?

My thoughts and prayers are with Chuck and your whole family.

[smiley=hug.gif] Jill

Title: Re: Polymiocitis and MM
Post by Mayhem on Jun 28^th, 2008 at 3:53pm

gotchlorine wrote on Jun 14^th, 2008 at 3:46pm:

He had the same surgeries I had seven years ago, the EDAS I think, sorry my memory is bad, and his surgeon was Dr Ogilvy at Mass General. Prognosis isn't good, as far as ever regaining higher functions.