| Moyamoya.com Forum | |
|
http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl
Moyamoya Related Topics >> Moyamoya Related Information and Support >> Burr Holes http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1115655060 Message started by ploeg on May 9th, 2005 at 12:22pm |
|
|
Title: Burr Holes Post by ploeg on May 9th, 2005 at 12:22pm
[smiley=huh.gif]
anybody there who can tell us more abt the burr holes operation. i am female, 48 years old, 8 years ago diagnosed with MM, used bloodthinners but now disease is coming back via tia's/blockages. Dutch hospital want to experiment with burr holes. was not done before in Holland with MM patients. any info help available? thks vm inadvance brgds Leo & Barbera Ploeg email : Leo@yellowduck.nl |
|
Title: Re: Burr Holes Post by kotipup on May 9th, 2005 at 8:42pm
Hi.... I've read a little about burr holes. I am just curious, though, why burr holes? I beleive the most effecive surgery would be a direct STA-MCA bypass. Or, if not, an indirect bypass. I am definitely no expert, but I remember - during my research for my daughter who has moyamoya - reading that multiple burr holes was really reserved, now, for those patients who did not have a suitable donor vessel to do either a direct or indirect bypass. Also I've read about it being done alongside an indirect or direct bypass surgery.
I would be leery about anyone wanting to "experiment" with a surgery, unless they had very extensive experience and it was the only option available. I don't know what your options are, but if you can afford to, you might consider going out of the country to have your surgery. As you probably already know from this site, Dr. Steinberg, here in the US, has tons of experience. I'm sure there are other doctors in many other countries (especially in the Asian region!) who have extensive experience, too. Personally, though, I'd be afraid if a doctor started talking to me about experimental surgery where I would be the giunea pig. Good luck... let me know if there's any way I can help (moyer305@comcast.net. Jenny |
|
Title: Re: Burr Holes Post by ploeg on May 10th, 2005 at 11:58am
:D
dear Jenny thks vm for yr reaction to which we agree. thats also why we are seeking for more info to make the right decision. mwhile we have discussed the case with Dr Steinberg of Stanford's who is def willing to give his opinion abt this case/patient. he confirmed that already in a direct email to us. we will therefore be talking to our present specialist for organizing with his assist a second opinion out of Stanford. we also will check our health insurance abt any special procedures. this for yr help sofar. appreciated ! kind regards from Leo & Barbera Ploeg Leo@YellowDuck.nl |
|
Moyamoya.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |