Hello mm Family

my name is arthena but i mostly use my middle (michelle).i am from (sportLa).i have a 8yrs old who name is (ashanti) and she is have mm.the reason for this e-mail. i am at the pointed of wanting to give up the fight because my child is not doing any better. my child have had both of the surgies done and neither one have help her. because she is still having min-storkes.on mother day she took a turn for yhe worsted and had to be rush to the hosptail. it wasn't a other storkes.thank God/but it was a virtal infection that cause  all most code.The doctor and the soical worker keep come at me about but her in a nurse home because they feel like its to much for me now/because we have been fight this battle since the age 41/2. There is so many differrent felling that i have,but i will not but her in nurseing home. I love my child very much,but i am tried of seeing my child suffering to live. She have had a total of 9 major storkes that have took alway her able to talk,walk,eat and etc. True i am tried but not tried engough to give up on my child.i wrote this e-mail to all of the new mm family member to encourage you to never give up even tough its seem like you are fight losse battle,because this battle is not yours its the lord.thank you for reading my story. i would care for some feed back from someone.if you care too.

                                    love always
                                  michelle@ashanti

Michelle,
           Where were her surgerys done? What hospital and surgeon. Are they educated at all about Moyamoya?
                              Nancy

Hi !! My name is Brad I am 19 year old and I have moya moya. I have only had surgery done on the left side of my head and had a indirect bypass. This past month or so My condition has taken a turn for the worse to. About 4 months after surgery i started to have seizures out of no were and are continuing to have them. They are not full blown seizures only minor but they do take there toll. I currently have had blood work down and i am fighting a viral infection that i will be on a 5 day anti-biotic for. Doctor says it could be keeping my moya moya active but it cant be proven. There is the chance of course that the viral infection could slow dowm my recroperation time and if not cured could possible do more damage inside my head. My surgeon is shure that my anti-biotic will cure it though. I will not know though if it did anything or slowed down my surgery until my 1 year post opperation check up. At times it is a loosing battle but with this disease being so rare sometimes you just have to hope for the best. My mom i can see how much it gets to her cause i have slowly had to put my life on hold when it comes to somethings like driving and all that because of this disease. Please feel free to email me or message on the website all my info is on this website

Hi Brad

i am glad to see that someone reply back to my e-mail.i am sorry to hear that you are having a hard time too.but i will  countiue to pray for my mm family.brad ,i can feel your pain because you are young man who is in his prime years of lifeand there sre so many things you rather be doing they to be dealing with moya-moya.i hope my words in encourge you in some kind of way to never give up and to keep on fighting this battle.please feel free to e-mail or to reply to me on this website. if you want to see who you are e-mail or talking with me and my child picture is in the mm family picture on page3 and it is listed under arthena @ashanti. will talk with you later.

                                       michelle

Nancy_N. wrote on May 25^th, 2005 at 7:44am:

Michelle,            Where were her surgerys done? What hospital and surgeon. Are they educated at all about Moyamoya?                               Nancy

hi nancy
my child had here surgerys done at LUSHSC in sport la.the first  one was done by DR.Rashad and the second was done by DR.Nandi. yes they were educated about moyamoya,