I was told back in January that I had Moyamoya after some episodes that I had. Went through the testing. Was put on medication told not to lift, strain, keep blood pressure stable and to go home and live life. Oh, yeah had good bloodflow. I came to this site and recieved support from members your all great!!!! a few of them told me to see a MM specialist. My occlusion is 80 to 90%.
 I was scared and nervous to find out more, but, not happy with go home live life. I have 2 wonderful childre and a great husband, and good family. I'm 33 and thinking I don't want to leave any time soon. I want to enjoy my life and family and not have to wait for the dreaded day of a stroke, or bleed to take that away.
  Did see mm specialist in Boston, Ma Dr.Scott.
 My surgery date July 11th with DR.Day At Brigham and Womens Hospital in Boston,MA for a direct bypass.
  Thanks sooooooo Muchhhhhh!!!!!! for giving me the advice  to continue on ...to MM specialist, and the hope that I could have surgery and get bloodflow back to the left side of my brain .  By the way in Boston I was told that I did have blood flow it wasn't good., they showed me the films of the right side and left side what a difference., and also my blockage is past the 3 helping arteries if this blocks off totaly I have no compasation.
  THANKS MOYAMOYA FRIENDS!!!!!!!! YOU PEOPLE TRULY MAKE DIFFERENCES IN PEOPLES LIVES!!!!!!
  GOD BLESS!!!!!         LENA
DJ..........THANK-YOU!!!!! YOU ARE A BLESSING!!!!!!

Hi Lena,

I too waited 8 years thinking it was ok.....my doctor never stressed HOW BAD, EITHER! After an angio they
would tell me I have enough new viens forming in the back of the head so, it's still "ok." I can put the surgery on the "back burner".
Not until I went to Stanford, recently was I told I am 8  (10) being the worse. I can't wait now till I get my surgery done on the 21st.
The swooshing sound is getting unbearable not to mention my memory is LALALALALAL.
Any way, choosing and listening to the RIGHT DOCTOR makes a world of difference. I'm glad you are going to get this surgery done SOON!

Not to mention, if it wasn't for DJ's websight and all the wonderful, helpful people out there...I probably would
be 6ft under.


LOL,
itsme

Dear Lena,

If I was a cheerleader, I'd be doing split jumps in the air for you right now!  I am sooooooooo happy for you!  Good for you for reading, educating yourself, asking for advice, then persisting to get the necessary treatment for your MM.

Of course you were (and maybe still are) scared.  Hearing that you have a disease of any kind is frightening.  Then coming to terms with the fact that major surgery is really the only option is pretty staggering.  You are on the right path though, and hopefully the time until your surgery will pass quickly.

DJ has done a wonderful thing in creating this site and giving people the means to communicate, support each other and build friendships.  I personally feel very indebted to him for what he's done . . . thanks Deej . . . you have a big heart!  Some people come and go, but many want to stay and help make a difference in the lives of others.  One person at a time, WE WILL DO IT!

Please keep us posted as your surgery approaches.  Know that we'll be here for you, ready to offer support.  I'm sure you will do well, with many years left to spend with your husband and children.  You will be in my prayers.

Hugs from California,
Jill