Hi,
My nephew was diagnosed with moyamoya when he was about 2 years old.  He suffered a few seizures.  He had had a brain operation to grow some new veins (I'm not sure of the procedure) and they are about to do the same procedure again today because it didn't work that well.  My nephew is 4 years old now and has a bit of brain damage.

His father was recently diagnosed with multiple sclerosis.  Do you think it could be a mis-diagnosis and the father has moya moya instead?  Is it a hereditary disease where the father was affected later in life?

Hello there and welcome to our Moyamoya family!  You will find that all of us here are very helpful and will try to answer any questions that you might have.  Please make sure you read as much as you can on this website as it is very informative and can help you a great deal!  

You asked about the hereditary factor of Moyamoya.  I will tell you what I tell everyone else.  It is about as common as having moyamoya (not very much - 1 in 2 million people in the U.S.)  If you need a number....about 7%.  Currently, my brother is being tested for moyamoya as he has been having some symptoms like numbness in the fingers.  But they are also checking him for early stages of carpal tunnel syndrome.  And yes, it is possible that your nephew's father has been misdiagnosed and it would probably be wise to get him to have a MRI/MRA to check it out.  I would also ask the father if he has had symptoms of MM like numbness in the extremities, weakness on one of both sides of the body, headaches, seizures, migraines, slurred speach, etc.  When I first went into the hopsital with MM symptoms, they tested me for MS as well.  Fortunately, they didn't diagnose me with it.  And yes, you can develop MM later in life.  I'm 34 and was diagnosed when I was 33.  There are many people on here that are older and have MM.  

My advise is to get him tested now!  It certainly can't hurt!  

Michelle

Welcome! Like Michelle said your nephew's father could had very well been misdiagnosed with MS and should look into that right away. Everyone is diagnosed with MM at different ages i was diagnosed at the age of 21.  I hope all goes well with your nephew! please let us know how he is doing and i am curious in what procedure he had done if you find out. I will keep all of you in my thoughts!

[smiley=heart.gif]Christy