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Moyamoya Related Topics >> Moyamoya Related Information and Support >> Cara's neuro appt today.
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Message started by CarasMOM on Aug 6th, 2005 at 12:45am

Title: Cara's neuro appt today.
Post by CarasMOM on Aug 6th, 2005 at 12:45am
Dr. Bernes at Phx Childrens Hosp has known Cara from day one...when she was a 2.5 year old.  He last saw her about a month after her second surgery when she was having "zillion" of TIA's !!!   He put her on Trileptal immediately...before her EEG...and 24 hour EEG....he never saw her again until today.

He walked in the waiting room with a student resident...totally shocked looking at Cara...trying to explain to this young new doctor Caras case...I was lipreading very hard seeing how he explained it to him.

He said it all took some time to come to conclusion to figure out what Cara had...we were so sure what she was having was MS related (he never mentioned that to us but knowing what MS is I can understand why)...but none of the tests showed any true signs of MS, nor any classic signs of MM.  He went on and on describing to this young man all the things Cara did...while he did ...Cara laughed and giggled and kept hugging Dr. Bernes, telling him "I am going to Las Vegas next week?"....He looked at me...GOSH...I have never seen her doing SO WELL...shes a completely different person..WOW.  I also told him we were meeting people with MM in Vegas...He thought that was great.

He is going to order a MRI and MRA...and get those off to Dr. Meyers in Rochester...and we'll just keep in touch on annual basis.  And if needed he'd be happy to prescribe more OT therapy.

I do recall Dr. Meyers telling me that it takes at least 18 months for a person to reach their maximum after a stroke...and Cara has had several....to give Cara lots of time.

Have a great weekend.... :) CarasMOM


Title: Re: Cara's neuro appt today.
Post by katden on Aug 6th, 2005 at 1:20am
What wonderful news! We'll have a lot to celebrate in Las Vegas. Can hardly wait to meet you.

......Kathy

Title: Re: Cara's neuro appt today.
Post by itsme on Aug 6th, 2005 at 4:40pm
Hi Cara's mom,

That's what we want to hear! Hugs & kisses to Cara.

Great news,
itsme

Title: Re: Cara's neuro appt today.
Post by STrantas on Aug 6th, 2005 at 5:11pm
Great news, Carol and Cara!

-Shari

Title: Re: Cara's neuro appt today.
Post by Shan on Aug 6th, 2005 at 7:42pm
Carol,

It's so great to hear such heartwarming and uplifting stories such as this.  Cara is such an inspiration!  :D  Also sounds like Cara is ready to take the drive to Vegas!  I wish I could be there too...it's going to be awesome!  (May I suggest Hawaii for next year's get-together?...hee hee)  ;;D  "ALOOOOOOOOOOOOOHA!"

Thanks for sharing....I'm sure she made Dr. Bernes' day!  ;)

Take care,
Shan

Title: Re: Cara's neuro appt today.
Post by LDG1040 on Aug 6th, 2005 at 9:40pm
Cara and Carol,

WOW!! Really Great News! [smiley=thumb.gif]

I am always amazed by what Cara has gone through and how far she has come.  Cara is truly an inspiration to all.

Hugs, :-*

Lore

Title: Re: Cara's neuro appt today.
Post by riosdallas on Aug 8th, 2005 at 10:33am
Hello,
Awesome news !!!!!  Have FUN!!! in Las vegas !!!
your friend lena

Title: Re: Cara's neuro appt today.
Post by LuangTom on Aug 9th, 2005 at 8:07pm
Wonderful!!! I can understand your joy at Cara's progress. My wife, Dee, is recovering well from her
Craniotomy with STA/MCA Bypass. Her symptoms have
lessened considerably and it is only four weeks since
her surgery by Dr. Eric Nussbaum. The hospital chaplain
told us that the doctor had "magic fingers". I believe him
now. God bless you all and keep the positive feelings flowing.......Tom and Dee in MN

Title: Re: Cara's neuro appt today.
Post by mg12061 on Aug 11th, 2005 at 6:35pm
Wonderful.wonderful news. Cara's been through so much I'm glad things are going well.She's quite a little trooper!!
Mary Grace

Title: Re: Cara's neuro appt today.
Post by Dewski on Aug 12th, 2005 at 10:45pm
Absolutely EXCELLANT!!!!   ;;D ;;D ;;D

YOU GO CARA!!!!!

[smiley=headbanger.gif]  [smiley=sayyes.gif][smiley=headbanger.gif]

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