First off, I would like to say THANK YOU to all of you who sent notes to Jill (behind my back, lol) to be put into the photo album given to me in Las Vegas.  It was the most incredible gift I've ever received in my entire life!  Reading all of your stories still brings tears of joy to my eyes and I will cherish that book forever!

For those of you who weren't able to see it in person, I wanted to try and share what an INCREDIBLE job Jill and Tara did with your notes.  Trust me, the pictures do the book absolutely no justice; it is simply beautiful.  However, hopefully you can read all of the pages and get an idea of what it's like.

http://www.moyamoya.com/photoalbum/index1.htm

Once again, thank you to everyone who had a part in giving me the BEST PRESENT EVER!

[smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif]

-DJ

DJ - coolest way to show those who weren't in Vegas.... your wonderful book!!!  I loved watching you open each page...your body language with it on your lap indicated...how touched you were and we could see immediately you'd forever treasure it just as we'll forever treasure MM.com.  ;;D

Tara and Jill - Your magic did wonders to that very special book for DJ...thank you for doing it.  It is simply BEAUTIFUL !!!

:) Carol

DJ,

I am glad you were touched by the album.  Sometimes I think you don't realize the impact MM.com has had on people's lives.  Speaking for ourselves, we are eternally grateful for your efforts and the friendships we've made through your site.  The comments, stories and pictures provided by all were definitely straight from the heart!

To everyone else:  I would like to again extend an invitation to those of you who weren't able to participate in this book prior to the Vegas trip.  If you would like to, please send me text and/or pictures . . . Tara and I would be happy to make a scrapbook page for you and then get it to DJ for addition to the album.  The book is only as special as the people in it (pretty darn special, if you ask me!), and it would be neat to have everyone in our MM family represented.  (Trust me - there are plenty of pages left to fill!)

Feel free to PM me if you need my email address or a regular mailing address for pictures.

Hugs to y'all,
Jill

DJ,

First, let me say thank you for creating moyamoya.com and giving Kevin the best present ever. life. I said to your mom that I don't know if you realize the profound impact you have made on peoples lives through moyamoya.com  I have said it before and I will say it again as it is worth repeating over and over that without you and moyamoya.com, clearly Kevin would not be alive today. You know the story and you know Kevin had been turned down for surgery/treatment by numerous doctors and institutions. You must know that without you and moyamoya.com we may never have found our way to Dr. Steinberg. We are eternally grateful to you and moyamoya.com and the moyamoya family. Words will never be enough.  What we do know is there is a ruby in your crown when you go to heaven. [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif]

Thanks for sharing the album online so we can look at it again.

For those of you who haven't seen the photo album it is absolutely incredible and heartwarming.  It is a true "story" album.  Jill and Tara put a lot of thought and effort into the album and it is obvious with all the fine details.  It is truly special and something for DJ to cherish forever and we thank them for their hard work.  As Jill has mentioned, if you weren't able to participate, you still can by getting in touch with Jill.  How special it would be to complete the album with the entire MM family.  Every MM family member is special and has their own unique story. [smiley=heart.gif] Add your special story to DJ's special book.

Hugs to all,

Lore and Kevin



 

Oh my...this album is absolutely wonderful!  Unbelievable job Jill and Tara!  So creative! I  [smiley=heart.gif] it!!!

DJ...also many many thanks to YOU for this wonderful site that has impacted our lives in so many ways!

My  [smiley=heart.gif] is touched!

Aloha,
Shan

Dj- that book could never fully express how you have touched so many people. We all love and are very greatful to the gift you have given us all.

Jill and Tara- you two did a great job and you should be very proud. I have started my own little book Moyamoya book so i can have all my MM adventures togehther. It will start with my trips to Stanford then vegas and has plenty of room for the next gatherings to be included.

I have not been on much because school is kicking my butt right now but i want everyone to know how grateful i am to have this MM family. In one of my classes i had to share a story that changed my perspective on life and of course it was my MM story. My class of course was shocked but they all found it amazing when i talked about the MM family and how we were able to take this negative thing and turn it into a wonderful family. Meeting many of you in vegas was an experience i will never forget - it was awesome. i look forward to meeting others next year and the years to follow.

Christy

Christy...loved your story about you sharing with your class....of your MM.com family !!!  My husband couldn't believe how much Cara and I "raved and ranted" about the "blast time" we had in Vegas.    He once said ..its just an online website, you don't know those people, how you know you'd enjoy being with them.   Oh honey I'd say...you be on as much as I have...you feel like you've known them your whole life....and in Vegas we just simply BONDED for life.    Then a phone call in our new house from Jill...impressed him...how she get our number...thats so awesome.  Then he goes "honey how come you aren't on....i give him a face.....he goes oh oh thats right you're busy unpacking.  

I just love it here !!!  Can't thank DJ enough for it.

;;D Carol

[glb][/glb] :DHello DJ, ;)This BOOK is ASSUME [smiley=laugh.gif] I can't wait till THIS YEARS "Reunion" :oI Hope Everyone Takes Advantage of the FREE ::) Disney Passes,,,,,,,,,,,,,AND gets the Fan Squirt Bottles and "COOL THINGS" Because It WILL BE HOT :-[ 8) :o ::)SEE YA in AUG !!!!!!!!! [smiley=laugh.gif] :o

Wanted to let you know I just updated the Family Picture page...

http://www.moyamoya.com/mmfamily/index6.htm