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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Daphne Follow Up Tests http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1126155956 Message started by kotipup on Sep 8^th, 2005 at 1:05am

Title: Daphne Follow Up Tests
Post by kotipup on Sep 8^th, 2005 at 1:05am

We are just so excited -- I had to share. Daphne had her angiogram at Stanford yesterday, and her revascularization looks excellent. Dr. Steinberg told us that it was one of the best he'd ever seen -- much better than he expected. ;;D ;;D

Today, we looked at the "before and after" angiogram films, and - boy - was it a huge difference. Simply amazing. Almost her entire brain blood supply is now going through the surgically-implanted grafts. :o

Tomorrow and Friday she has her SPECTs, but - so far, we have been really happy with the news. We are so proud of our resiliant little girl who - just seven months ago - was expected to die, and so grateful for Dr. Steinberg and everyone at Stanford.

Jenny (mom to Daphne. 23 months old, today)

Title: Re: Daphne Follow Up Tests
Post by Chelsie on Sep 8^th, 2005 at 8:39am

Jenny-
What wonderful news! I am thrilled to hear those results! Thanks so much for sharing...that made my day!
Hugs,
Chelsie

Title: Re: Daphne Follow Up Tests
Post by STrantas on Sep 8^th, 2005 at 9:04am

Jenny -

That is awesome news! Thanks for sharing! Please give Daphne a big hug for me! Keep up the good work, Daphne!

-Shari

Title: Re: Daphne Follow Up Tests
Post by LDG1040 on Sep 8^th, 2005 at 9:55am

Jenny,

I could feel the excitment and relief in your words. Celebrate!!! Celebrate!!! Dance to the music!! (I'm dancing now for Daphne and you). [smiley=shore.gif]

This is such great news for you and Daphne. It still amazes me how resiliant children are when it comes to some of the most horrific medical conditions. The fact that her blood supply is almost 100% is just incredible. [smiley=sayyes.gif]

Of course I'm predjudice when it comes to Stanford and Dr. Steinberg but I can really relate to how grateful you are because I too am grateful for them and what they did for Kevin. [smiley=heart.gif]

It's true, it's true! that Dr. Steinberg and Stanford do such extraordinary things for MM patients. [smiley=wow.gif]

I'm so elated you and Daphne have such great news! Simply savor it. Give that little Daphne a great big hug and kiss for me. [smiley=hug.gif]

Hugs and God bless,

Lore

Title: Re: Daphne Follow Up Tests
Post by CarasMOM on Sep 8^th, 2005 at 10:54am

Jenny....how exciting...thats wonderful news. Daphne will just keep on growing, healing, getting stronger. ;;D

Cara had her MRI and MRA last Friday and we found out the both bypasses were flowing well, too. Dr Bernes is just her neurologist in Phx. They decided not to do the angiogram yet...shes doing equally great too. Dr. Bernes says that her surgeries were indeed successful too. We're sending Dr. Meyers a CD of the tests and will get more feedback from him eventually.

Tight HUGS, Carol

Title: Re: Daphne Follow Up Tests
Post by Seachelles on Sep 8^th, 2005 at 2:56pm

Carol and Jenny,

Such great news to hear about Cara and Daphne! How absolutely amazing! Please give Daphne and Cara big hugs and kisses for me! :)

Michelle

Title: Re: Daphne Follow Up Tests
Post by gotchlorine on Sep 8^th, 2005 at 3:39pm

Ditto to what Michelle (and everyone else) said, Jenny and Carol! I love to hear success stories, and am truly thrilled for both of your families!

Lots of love,
Jill

[smiley=heart.gif] [smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif][smiley=sayyes.gif] [smiley=heart.gif]

Title: Re: Daphne Follow Up Tests
Post by Shan on Sep 8^th, 2005 at 5:00pm

Jenny & Carol,

Amen!...to the wonderful news!!! [smiley=hug.gif] What a blessing!

Take care,
Shan

p.s. Please also keep us updated on Daphne's Story on the Discovery Channel. I can't wait to see her! ;)

Title: Re: Daphne Follow Up Tests
Post by babyblue on Sep 9^th, 2005 at 9:32am

Jenny-

Way to go Daphne!!! I love hearing good stories to start my day. Thank you for sharing the great news.

Christy

Title: Re: Daphne Follow Up Tests
Post by Dewski on Sep 15^th, 2005 at 1:27pm

Jenny,

AWESOME AWESOME NEWS!! WTG DAPHNE!!

[smiley=headbanger.gif] [smiley=headbanger.gif]

-= Dewski =-

Title: Re: Daphne Follow Up Tests
Post by Greg-NJ1 on Sep 19^th, 2005 at 8:05pm

Wow, great news. I love hearing the wonderful success stories, as it makes things a little easier as I await my full diagnosis.

Congrats again,
Greg