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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Fundraiser set for girl with rare disorder http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1126898260 Message started by Seachelles on Sep 16^th, 2005 at 3:17pm

Title: Fundraiser set for girl with rare disorder
Post by Seachelles on Sep 16^th, 2005 at 3:17pm

This is the link to an article that was posted in the Concord Monitor today. The Concord Monitor is out of New Hamshire.

http://www.concordmonitor.com/apps/pbcs.dll/article?AID=/20050916/REPOSITORY/509160321/1001/NEWS01

Title: Re: Fundraiser set for girl with rare disorder
Post by LDG1040 on Sep 16^th, 2005 at 3:51pm

Michelle,

Interesting article. Thanks for sharing.

I take it Melanie doesn't know about moyamoya.com? I noticed she wants to get a computer to network with others who have MM. I believe I may call Lindsey and let her know there is an internet MM support group. What about a foundation? Isn't one already established? I believe that ocurred prior to me coming to the web site. What is the status of the foundation?

I was glad to see the exposure on moyamoya in the media but my heart goes out to Melanie. It sounds like she has been through a lot in a short period of time and must be young - maybe high school age.

Hugs,

Lore

Title: Re: Fundraiser set for girl with rare disorder
Post by Shan on Sep 16^th, 2005 at 11:56pm

Thanks Michelle. I hope that her fundraiser is a success. I recently had one here where I live, and I am still so amazed at the outpour of support...especially from people I don't even know who were so generous! The "Aloha" spirit definitely shined through... ;;D

Lore, I do hope she finds this site. It's awesome! That is so kind of you for wanting to get in touch with her! ;)

Is there a MM foundation? I'd like to know more about it if anybody has info.

Thanks again, Michelle for sharing.

Take care,
Shan