does anyone out there know of any MM speacialist in New York City.

Yes Dr.E. Sander Connolly of NY Presbyterian Hospital.
  He just did my surgery 4 days ago!  Great Job.

You can't go wrong with him!

But I'm sure that I'll be jumped on.  Now what was that
"definition of a specialist again?  Be nice now I sti;; have my staples in.

  Take care  Tom G.

Thank you so much for the prompt reply.  not sure weather or not i have moya moya.  however, my mra came back and my doctor believes i might have mm.  Going on the 13th to see a stroke speacialist, Dr. Brockton.  i am just so tired of the way i have been feeling. my head constantly hurts i am weak all the time.  i am just so frustrated since june.  First the doctors told me my carotid arteries are narrow but not to worry about it. they don't know why i am getting headaches and why i am feeling weak. sorry i am going on and on.  just needs to vent to someone.  
Thanks for the info

Now, now Tom...behave.  [smiley=smug.gif] You can always go to the closet and pull out the armor if you need it again.  ;;D  Ha!

We all have a right to our individual opinions...and bottom line is IMO is that whomever we sought medical attention from for our surgery and treatment is whom we will forever hold up high on a pedastal...in our eyes.  Obviously, we did not all seek help from any one individual doctor, and luckily for us, there are MM specialists out there (although, I still believe few in numbers) throughout the U.S. to provide the necessary attention we need.  

In my individual case, I chose to travel across the Pacific Ocean, then across the continental U.S. from California to Raleigh, North Carolina to see the neurosurgeon of my choice...Dr. Fukushima.  Actually, his name is well known where I live, and I was amazed at how many patients travel from all over the world to be seen by him.  Unfortunately, he too travels and performs surgery domestically (Florida, Pittsburgh, Ohio...) as well as internationally (Japan, Sweden, Italy...) so it may somtimes be difficult to see him.  I don't want to get carried away and start sounding like his marketing manager; however, I'm just thankful for what he has done for me.  There are other MM specialists, and everyone here is a testimony of their work/success.  It wouldn't hurt to send your films and obtain the opinions of as many MM specialists as you'd like, then base your decision on where to go from there.  There are many factors, non medical ones such as finances, which may also need to be considered in one's decision.  Alas!  The freedom to choose...the land of the free!  That's what makes this country such a great place to live!  ;;D

On a serious note, Tom, Dr. Connally sounds wonderful!  You, too must be in great shape/health!  To be  home already from your recent surgery in just a matter of days is unbelievable!  ;)  Amen!

Cherylb, you can browse through the Surgeons with Bypass Experience thread to see if there are any other doctors in your area.

Take care,
Shan

Cheryl,

Tom G is correct....Dr Connolly is wonderful. I met him earlier this summer when I had an initial diagnosis of MM. Just like you, my neuro found my left corodid to be "smaller" and thought MM. Dr. C recommend a series of test to be monitored by my neurologist, which will soon be completed.

Seeing that you are only a few miles away, I would also recommend my neuologist, Dr. Lyle Dennis in Englewood, NJ (only a few miles from the George Washington Bridge)..although he is not a MM specialist, he did train at Columbia and knows a lot about MM. He will take you through the intial tests and diagnostics (MRI/MRA, CT-Angio, TCD, SPECT, EEG, etc)...once he has a good starting point, he will reffer you to Dr. C for a "more informed" consultation.

Please know that you have found the best place in the world for MM information. I can tell you from personal experience, as I am still being diagnosed, the support and knowledge from everyone on here is out of this world.

Good Luck and keep us posted,
Greg

    Hi Cheryl I forgot to give you Dr Connolly's number before.

    It's 1-212-305-0376

Take care  Tom G.

Now, now, Tom, I keep telling you that no armor is necessary.  

Actually, I think Dr. Connolly is a very nice guy.  I do consider him a specialist, since he's done EDAS on over 50 moyamoya cases (as of Feb this year).  I just don't consider him an expert (semantics, but a distinct difference for me).  He's also very conservative with a disease that _I_ (emphasis on I) feel needs to be aggressively treated with surgery.  Experts have done both direct and indirect and have done either procedure over 200 times on moyamoya patients, and who do research on moyamoya.  

Now, which surgery is better (Direct vs. Indirect) is a subject for another thread.  ;)

Like I said, everyone is different.  I don't think Dr. Connolly is a bad doctor -- I just think, in my case,
he was wrong (esp. since my 1st second opinion, 2nd second opinion, and 3rd second opinion all disagreed with him, two of those being experts).  

Cheryl - I think going to Dr. Connolly is a great start.  He's incredibly kind and accomodating.  Whether he suggests surgery or doesn't, be sure to get a second opinion.  :)

Trina

Tom,
Dont ever hesitate to reccomend Dr Connolly
you shouldnt have to feel like your going to be jumped on. In my oppinion, He's a great doctor and he saved my brother's life. numbers dont matter to me. i dont care how many surgeries someone has done. all that matters to me is the one surgery he performed on my brother that saved his life. and of course your surgery too! glad to see that you are feeling better. sorry my mother and I havent gotten a chance to call, but u have always been and will continue to be in my prayers. Cant wait to meet you some day. you were a great help to me and my family when we were going through my brother's surgeries and for that i will always be grateful. stay well!

Just wanted to say thanks for the number.  You all have been such great help.  i am just hoping that something could be done to help.  I have been reading that moyamoya pts usually have one sided weakness, in my case my entire body feels weak where i can't get out of bed. I am a 35 yr old female and this is the worst i have ever felt.  I just cannot wait for oct 13th to hear what the doctors have to say.
thanks again
cherylb