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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl NON Moyamoya Related Topics >> Daily Jibber Jabber >> Spreading the word about MoyaMoya http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1129258036 Message started by hillary on Oct 13^th, 2005 at 10:47pm

Title: Spreading the word about MoyaMoya
Post by hillary on Oct 13^th, 2005 at 10:47pm

I've kind of kept this one a secret until I knew for sure that it was going to happen. We did an interview with the local newspaper here in New Braunfels Texas. I emailed them the press release before we went to Vegas, and they just got back to me a couple of weeks ago. Anyway, the photographer was here this evening and was excited to be here taking pictures of Holly. We did get a call from the reporter earlier today that the story will run tomorrow (friday). She also informed us that it will be on the front page of the newspaper. I will post the link tomorrow morning so everyone can read it.

Have a good night everyone
Hillary

Title: Re: Spreading the word about MoyaMoya
Post by hillary on Oct 14^th, 2005 at 7:18am

Ok, everyone.

Here is the link to the article.

www.herald-zeitung.com and its on the front page.

Hillary

Title: Re: Spreading the word about MoyaMoya
Post by Holly_the_kid on Oct 14^th, 2005 at 7:47am

Hi everyone,

Hope you enjoy the article, I'm taking a copy to my school today to show it to friends and teachers.

;;D

Title: Re: Spreading the word about MoyaMoya
Post by Hailey_girl on Oct 14^th, 2005 at 7:50am

Hi,

Just wanted to say it was a cool article about my sister. Enjoy

Hailey

Title: Re: Spreading the word about MoyaMoya
Post by Lore on Oct 14^th, 2005 at 7:50am

Hillary,

What a great story about Holly and her MM journey.

It looks like Holly is doing very well and very much enjoying life.

Thanks for sharing Holly's story. I'm so glad to see MM get some attention and hopefully provoke awareness or at least facilitate dialogue about it.

Give Holly a big hug.

Lore

Title: Re: Spreading the word about MoyaMoya
Post by Seachelles on Oct 14^th, 2005 at 9:45am

Hillary,

What a great story about Holly!!! Great to see that more articles are being done on MM.

Kudos to you!!!

Michelle

Title: Re: Spreading the word about MoyaMoya
Post by Shan on Oct 14^th, 2005 at 11:41am

Great job Hillary! ;)

I am all for raising awareness of this so-called "rare" disease. Did you leave your phone # or email address for the newspaper to give to interested readers? After my 2 interviews on the local news, emails and calls started coming in from viewers who also have MM, have family/friends with MM, or think they may have MM because they have similar symptoms. You'll be surprised! :o I think what you did is awesome!

Congrats to Holly! Looks like she's plugging along just fine... ;;D What an inspiring story! Thank you for sharing Holly's story! [smiley=hug.gif]

Take care,
Shan

Title: Re: Spreading the word about MoyaMoya
Post by LA on Oct 15^th, 2005 at 2:04pm

Congratulations on a great article!!!!

I cried with joy when I read it.

All of you are wonderful mm 'ambassadors'. This article will be a helpful resource in recognising, being treated and living with mm.

Love and HUGS to Hillary, Hailey, Holly and Linda.

Jack sends LOVE too.

LA (Linda A)

Title: Re: Spreading the word about MoyaMoya
Post by babyblue on Oct 17^th, 2005 at 5:48pm

Hi Hillary and Holly-

I thought the article was awesome. I keep emailing newspapers in my area but i guess they just dont want to talk to me. Oh well atleast someone is getting the word out. You too are doing a great job.

[smiley=heart.gif]Christy

Title: Re: Spreading the word about MoyaMoyaWhat a great
Post by katden on Oct 17^th, 2005 at 9:39pm

What a great article! We, as advocates for our family members with this disease, are always up against the ignorance about this disease. You guys really did your part [smiley=sayyes.gif] [smiley=sayyes.gif] [smiley=sayyes.gif]

Thanks so much................Kathy

Title: Re: Spreading the word about MoyaMoya
Post by STrantas on Oct 18^th, 2005 at 8:52am

Great article, Holly and Hillary! Thanks for sharing!

-Shari