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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Any MM sufferers who have had a stroke http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1131725111 Message started by Christina on Nov 11^th, 2005 at 11:05am

Title: Any MM sufferers who have had a stroke
Post by Christina on Nov 11^th, 2005 at 11:05am

Just to let you know that there is a support charity for younger stroke sufferers at Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

This is a resource for UK stroke survivors, but we are happy to have visitors from anywhere in the world!

We are developing plans for a children's stroke workshop at the moment, and would be delighted to send details of this to any families who have been affected by stroke as a result of MM. If you have had a stroke (at any age) do visit our messageboard and share your experiences with other stroke survivors - you will be helping to raise the profile of MM!

With very best wishes to you all - Christina

Title: Re: Any MM sufferers who have had a stroke
Post by Jan on Nov 12^th, 2005 at 2:14pm

;;D ;;DHi Christina,

I suffered a mild stroke before being diagnosed with MM. It all started with a very bad headache. I had some numbness on my left side. Didn't think anything of it but a bad migraine, until my boyfriend told me that my mouth was drooping. I then told him to bring me to the hospital (this was 2 days later) where they took a CT scan (it showed a bleed). I was then sent via air ambulance to Oahu where I was diagnosed with MM after doing a cerebral angiogram. I had some paralysis on my left-side of my body. The most paralysis is gone, but I still have some slurring when I speak. I have not suffered any strokes since being released from the hospital at the end of June. I still have some trouble writing (my hand gets tired) my handwriting is never going to be the same (I'm left-handed) [smiley=ohjez.gif] ;;D. Sorry being ambidextrous is not going to happen....my right hand does like being told what to do. [smiley=confused.gif]

Jan

Title: Re: Any MM sufferers who have had a stroke
Post by Christina on Nov 13^th, 2005 at 6:25am

Hi Jan - sorry to hear about your stroke.

The main thing I can tell you is that you will keep on getting better and better - keep on working on your LH!

I know there are lots of physicians who say that you won't make any progress after the first 6 months after a stroke - at least, that's what stroke survivors in the UK tell us. THIS IS RUBBISH!!! ;;D Just look at the Different Strokes message board - the stroke survivors there are saying with one voice that (although progress may slow down) they are improving all the time - even many years after stroke.

Very best wishes with your continued recovery!