Moyamoya.com Forum - Print Page

Moyamoya.com Forum
http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl NON Moyamoya Related Topics >> Daily Jibber Jabber >> Stanford Info. Booklet/DVD http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1131827786 Message started by sharlee_gyrl on Nov 12^th, 2005 at 3:36pm

Title: Stanford Info. Booklet/DVD
Post by sharlee_gyrl on Nov 12^th, 2005 at 3:36pm

Hi everyone!

I know I don't post much at all, but I do read our boards on a regular basis. ;;D

Just wanted to drop in really quick to let you all know that I received the Stanford Moyamoya information booklet and DVD today and I was so happy. The topics that are touched in the pamphlet are some of the very first questions I ever had about this disease and it makes me so happy to know that future patients will have this as a resource. The pictures are awesome and just looking at all of the different faces who live with Moyamoya make me feel "normal" in a sense. I told my parents and my boyrfriend that it makes me PROUD to be a Moyamoya patient, hehe. ::)

I hope everyone is having a good weekend. Take care and God bless!

Title: Re: Stanford Info. Booklet/DVD
Post by Seachelles on Nov 12^th, 2005 at 4:22pm

I've got the booklet as well and immediately went up and gave my brother one. It gave him something to read and look at while he's in the hospital recovering from surgery. They did a great job on the pamphlet. :)

Title: Re: Stanford Info. Booklet/DVD
Post by Lore on Nov 14^th, 2005 at 4:00pm

We received the Stanford MoyaMoya Booklet and DVD as well and they are awesome! [smiley=thumbsup.gif]

The pictures, as Jan stated, show you are not alone with having MM and remind us that it could be not only a MM patient but someone else you know - a child, parent, brother, sister or simply the person next door.

What a terrific tool to not only educate oneself about MM but to educate the medical community and others.

Stanford did and excellent job with the Booklet and we are so glad to see something of this magnitude published about MM and the topics of concern regarding MM addressed.

Go Stanford! [smiley=bow.gif]

Lore and Kevin (Cubbie)

Title: Re: Stanford Info. Booklet/DVD
Post by Greg-NJ1 on Nov 14^th, 2005 at 4:13pm

Sounds like a great information tool....how can we get a copy?

Thanks,
Greg

Title: Re: Stanford Info. Booklet/DVD
Post by MichelleB on Nov 14^th, 2005 at 11:41pm

We received this info also. What great info to keep with us at all times. We watched the DVD today. It was fun to see all the familiar faces. Dr. Albers was the one who took care of Eddie first and diagnosed the MM. Thanks to him! Hope everyone else receives this great gift.
MichelleB

Title: Re: Stanford Info. Booklet/DVD
Post by Annica on Nov 16^th, 2005 at 4:30pm

Hi!

I am not sure how big this informationbooklet is in weight or size. How do I get a copy? I feel I have to get the word out to SOMEONE in this (when it comes to moyamoya) uneducated part of the world and maybe this could help? :-/

Annica