Hi, just a quick post,

Firs, update  re a prev info post, I am still waiting for appt for Lydia's MRI and angiogram at  the MM clinic in London(Great Ormond Street Childens Hospital) Probably be after Christmas now.

In meantime, quick question re symptoms. Lydia has been doing really well and has not had a TIA for over 6 weeks now. But she keeps complaining of puffy cheeks and her cheeks go very flushed, when they do, she says they are not numb, just feel very puffy and she feels unwell.
Last night she complained again, and woke up in the night, very distressed, saying cheeks puffy, and that she just felt unwell. She is now in a deep sleep so I will keep her home from school.

Do you think this is a type of TIA, does anyone else suffer from similar symptoms.


Also, when she has her MRI do you think I should have a doppler scan  also, as I have never been informed as to the % of occlusion in her arteries and she has only had one doppler scan when she had her stroke 3 years ago?

thanks Louise

Louise,

It's interesting that you mentioned this... I had been thinking about posting a similar question about my daughter's symptoms.  

For Daphne, though, it's almost always on one side (the left side).   Daphne will start getting fussy, and you'll suddenly notice that the left side of her face is puffy (especially her cheek and eye lid) and very red.  It's weird, because the other side of her face will look totally normal, and you can actually see a straight line running vertically down the middle of her face --- on one side it's red, on the other side it's normal.

We used to notice that this would often preceed a seizure.  Now, we notice that it will preceed one of Daphne's inconsolable crying episodes (she has been seizure free on medication).

Since Daphne's surgeries, we also notice that this happens less often than it used to, although it does still happen regularly.

We've been wondering if this is something TIA related, too.