Hello,
We are The Cutting Family in Rio Rancho, NM.
Our son was adopted from China 6 months ago - he is 4+ years old, and has just been diagnosed with moyamoya.  He will be having the cranial revascularization surgery at Boston Children's Hospital in early March.

It seems that many here have had the surgery at Stanford, but has anyone undergone the surgery with Dr. Michael Scott at Boston??

YuYu, our son, will have only his left side done for now; he had a stroke two weeks ago and that was the side effected.

We are hopeful, but still terrified, and have just now found some time to do more research on moyamoya, and we are so happy to have found this site.

Many thanks,
Cheryl - YuYu's mama.

Hi Cheryl, and welcome to our family!  I am sorry circumstances led you here, but am very glad you found us!

This post won't be long, as it's time for the big game, but there are a whole bunch of people on this site who have had surgery by Dr. Scott.  You will hear from them (or their parents) soon, I'm sure!  He's one of the "experts" we're always advising people to go to.  As you continue to read, you will see that it is extremely important for treatment to be given by a doctor who sees this disease on a daily basis.  Dr. Scott definitely falls in this category, so your son will be in very good hands!  The more education you have also, the better you'll be able to advocate for him.  So, please don't hesitate to ask whatever questions come to your mind.  There is a wonderful, supportive group of people here . . . all who have walked this road in one way or another.  (By the way, I am the mom of a 19 year old daughter who had 2 MM surgeries at Stanford just 20 months ago.  She is doing very well, and you'd never even know she'd had surgeries.)

The prospect of surgery is frightening, but know that you're on the right track.  There should be every reason for YuYu's surgery to be successful with the wonderful care he'll get.  Hang in there, and we'll be here for you!

Hugs from California,
Jill  

Hi Cheryl,

Welcome to this site.  This is a great site for support of this "rare" disease.  As for Yuyu, I'm not so happy to hear that he too has fallen victim to MM, but looks like you've already solicited the advice of a MM expert!  ;)  There are others here who have undergone surgery by Dr. Scott.  Shari, for example, is a great example of his God-given talents.

If you have any questions, please do not hesitate to post them.  We are all here for you and you family, as many of us have been in your shoes.

A little about me...I was diagnosed with MM and had an emergency double bypass and an indirect procedure last year May at the Wake Medical Centerr in Raleigh, North Carolina.

Once again, welcome to the MM family!  Please know that Yuyu is in our prayers.  [smiley=hug.gif]

Take care,
Shan

Thanks to those of you that replied to my post tonight...
I was just heading off to sleep but decided to pop in and see if there were any replies.

We are (my husband and I) not sleeping great these days due to worry about our son, and his risks of stroking again before the March surgery...but your posts have given this tired mother a bit of peace tonight.
We are thankful to have found you all, and I am sure that as the days pass we will have questions for you!

Many thanks,
Cheryl and Paul - parents to dear YuYu from Shanxi, China

Hi  Yuyu's mother and father,

Don't worry he will be fine. The operation sounds frightening but you are in good hands. Yuyu will be fine and he is lucky to have both of you as such caring parents. I had my surgery at Stanford last year but MEDICINE today is amazing. GOOD LUCK and keep us posted.

LOL,
itsme

Hi Cheryl -

I had my surgeries with Dr. Scott a little over two years ago (I was 28 at the time of my surgeries).  I had both sides done - a week apart.  Dr. Scott is as wonderful as everyone says he is!  He is  a wonderful man and a brilliant surgeon!

I'm sorry you had the need to find us, but I'm glad you did.  You are in great hands with Dr. Scott.  Please let me know if I can answer any questions for you!

-Shari

  First welcome, you've come to the right place to get some answers and support.My daughter had surgery with Dr.Scott when she was 5 yr's old.It's been almost four years since ehr surgeries and she's doing great.She's had no new strokes since the surgeries.She had both sides done a week apart.You will imediatly be at ease with Dr. Scott and everyone at Boston Children's Hospital.Everyone knows so much about MM it was very refreshing to be able to have faith in eveyrone who treated our daughter there.Dr. Scott is not just a wonderful Dr. but a very caring person.Your son is in very good hands.If you have any specific questions feel free to ask away.I know how hard the waiting is it sometimes seems unbearable.We spent so much time researching on the computer but unfortunatly there was no site like this for support.My prayers are with your family.
Mary Grace

Hi, Cheryl:

I am Tingxin, we are from Sichuang, China and now Live in Los Angeles. Our daughter was diagnosed at age 16 and had one surgery done last month, very successful and she already feel better and can sings a little bit,  We'll have another one done on March 1. We know how frightening it is to see your child to get a TIA or stroke or just worry about it. But good to know the surgery date is scheduled at early March.

Good Luck!
Tingxin