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My name is Dana & I'm from Alabama, recently I've been in the hospital since May 3rd til May 15th,  & returned back on May 18th & currently still here today...   The doctors have found out that I have restricted blood flow occuring in  the Duodenum ( part of the stomach that then attachs to the 1st part of your small intestine), which I have been uncontrolliably vomitting & get dehydrated. (SPELLING??) They do not know why this has happened & what diagnosis to place with it at this time....   I have been on steriods by injections thru IV of Solumedrol & currently they are tapering me off of it,   they are trying to send me to Vanderbilt which doctor I'm not sure yet, I've been stuck so many times that I agreed to have the Picc Line placed in my left arm back on Friday....
The two doctors here are not knowledgable of Moya Moya & feel that it isn't related to the Gastrology problems that I have...

I'm writing this message for any feed back if possible...
I was due to go under for my second EDAS surgery with Dr. Winfield Fisher at UAB Hospital this summer, but due to my current blood problems & levels, that will not be happening until much later.  No problems with MOYA MOYA  so far......   My first surgery was successful I just hate taking KEPPRA medication and no driving....   Oh, course right now I don't feel up to driving...

Keep me in your prayers, & may the Lord show the doctors some solid answers to my unknown condition..

Love
Dana  
Room#717 #205-939-7717  at St.Vincents Hospital

Hi Dana,

I’m so sorry to hear you’re having so many other problems. God love ya! Please know we’re here for ya and that I’ll certainly be praying they find some answers.

I would think it very important that your doctors be familiar with MM though, even if it may not be related. MMD is such delicte situation with many factors involved.

Please keep us updated. You're in my thoughts and prayers.

Mar