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Moyamoya Related Topics >> Moyamoya Related Information and Support >> Paige's webpage http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1158550539 Message started by jnokes on Sep 17th, 2006 at 11:35pm |
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Title: Paige's webpage Post by jnokes on Sep 17th, 2006 at 11:35pm
I wanted to let everyone know that I have created a webpage for my daughter Paige through Caring Bridge.It gives a history of her medical conditions,a journal through her surgery,and pictures.The address is www.caringbridge.org/visit/paigenokes .
Jennifer |
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Title: Re: Paige's webpage Post by Islandentity on Sep 18th, 2006 at 1:18am
Jennifer,
Once again the people on this site have provided me just what I was looking for ...ty what a wonderful site I have started one for Robert were i will beable to post to my large family as we progress through this, It will save me the embarassment of forgetting to call someone again(in all the confusion i forgot to call my former sister In-law who is still like a sister to me and let her know about Robert) Hope all is well with you Mike |
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Title: Re: Paige's webpage Post by kotipup on Sep 18th, 2006 at 5:35pm
I visited Paige's site this morning. What a beautiful little girl! You would never guess, by looking at her, all that she's been through. Amazing how resiliant children can be. I hope she is still doing well at home after her surgery :)
Jenny |
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Title: Re: Paige's webpage Post by STrantas on Sep 19th, 2006 at 9:20am
I visited both Paige's and Robert's web sites - what beautiful children!!! Great job!
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Title: Re: Paige's webpage Post by jnokes on Sep 19th, 2006 at 11:04pm
Thank you to everyone.I found out about Caring Bridge while Paige was going through radiation at St.Jude Children's Hospital in Memphis,TN but didn't actually set her site up until early this year after she was diagnosed with MM.I have found that it has been very useful in keeping everyone updated on her condition.I was so glad to hear that through this I was able to help Mike(Robert's father).I know it's not alot,but I have found as a parent of a kid with MM,every little bit helps and lets us concentrate more on getting our children through this.Hopefully,I can help others if not but just a little,as so many of you have already helped me with your support,encouraging words,and prayers.
Thank you & God Bless Jennifer |
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