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Moyamoya Related Topics >> Moyamoya Related Information and Support >> Wisconsin http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1160604464 Message started by firefli66 on Oct 11th, 2006 at 6:07pm |
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Title: Wisconsin Post by firefli66 on Oct 11th, 2006 at 6:07pm
Is anyone from WI I need help with doctors and where to go. Any help would be greatful. :-/
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Title: Re: Wisconsin Post by Mar on Oct 11th, 2006 at 8:25pm
Hi firefli66,
I looked here on the website in the section, Surgeons with Bypass Experience and I found one neurosurgeon from WI. Dr. Bermans Iskandar - U of W - Madison, WI. The only way we know a doctor has experience in treating MM is if they post it. But it’s been our experience that MM specialists’ who deal with this disease on a daily basis are far & few, so many people send their films for a second opinion or travel out of state to a MM specialist. Dr. Steinberg is the MM specialist from Stanford, CA and Dr. Scott is a pediatric MM specialist from Boston. If you’re interested, all the information about these doctors and their e-mail addresses is under LINKS, in the right hand top corner. This website has a wealth of information. If we can be of any help, please don't hesitate to ask. No question is too small. Mar |
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Title: Re: Wisconsin Post by Islandentity on Oct 11th, 2006 at 9:11pm
hey firefly, where in wisconsin are you? I am on the eastern end of MI. U.P. we looked into Mayo in Minnesota, and I also found out recently that a surgeon that interned under DR. Scott (boston) and Dr. Meyers (mayo) has transferred to U Of M Ann Arbor.......if we were not 3/4 of the way to having robert set to go to stanford ....and had U of M not missed the MM in Robert for more then 3 years....we would be considering him..........Good Luck, hope this helps.
Mike |
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Title: Re: Wisconsin Post by debs on Oct 20th, 2006 at 9:18pm
Hi firefli,
I live not too far from you in Delafield, WI! When I was diagnosed with mm after having a severe stroke in 1997, I was at St. Lukes in Milwaukee with a neurosurgeon named Dr. Ahuja; he had only seen mm one other time in his medical career. At that time, (in the mm dark ages) he told me to wait & have another stroke rather than have the surgery!! (at that time, my doctor thought the surgery was believed to be worse than having a stroke... nothing could be further from the truth!!) Instead of following his terrible advice, I was scheduled to go to Mayo Clinic for the surgery but my guardian angels were working overtime & I found out about Stanford & Dr. Steinberg. I had both my surgeries there in 1998 & totally believe that is the absolute best team of mm doctors & staff in the world!!! With almost 200 mm surgeries, they've seen it all~ Maybe you have already decided to go to Stanford... I only found your post today. Good luck in whatever you decide~~ email me if you want~~ I'd love to talk to you or maybe even get together. (My son was just in Burlington last month to see a haunted site!) I have been on disability since my stroke but I'm doing all right. What symptoms do you have? Have you contacted Dr. Steinberg or sent your x-rays for them to see? They are really fast in getting back to you with their expert analysis. Hope to hear back on how you're doing~~ deb |
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