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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Moyamoya patient information survey http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1172164843 Message started by DJ on Feb 22^nd, 2007 at 12:20pm

Title: Moyamoya patient information survey
Post by DJ on Feb 22^nd, 2007 at 12:20pm

I've recently received a letter from Teresa Bell-Stevens at Stanford University asking for our help regarding a paper she would like to present at the American Association of Neuroscience Nurses conference in April 2007.

The goal of the paper is to enlighten neuroscience nurses about what is perceived to be a lack of information available for moyamoya patients in the general medical/nursing community.

Please take a moment to fill in the survey and share the experience of your (or your loved one's) moyamoya diagnoses. Information you offer hopes to provide future moyamoya patients with more timely information and treatment options when originally diagnosed.

Data from this survey will only be collected until March 15th, 2007 so your prompt attention is appreciated.

Survey is located at: http://www.moyamoya.com/survey.html

THANK YOU for your input!

Title: Re: Moyamoya patient information survey
Post by rmbielawa on Feb 22^nd, 2007 at 7:10pm

Hi DJ,
I received an email from you today about this survey. I filled it out and clicked the "submit" button. It said it would redirect me to the moyamoya.com site...but I received a error message. Just want to be sure Teresa gets my survey. I am so happy to respond to such an important topic that we've experienced first hand! I thank God for your website everyday!
Renee Bielawa
rmbielawa@yahoo.com
Wisconsin

Title: Re: Moyamoya patient information survey
Post by DJ on Feb 23^rd, 2007 at 4:31am

Hi Renee,

Thank you for trying to fill out the survey. If you got an error after hitting the "submit" button and you didn't make it back to the message board... chances are... it didn't go through.

Since no personal information is asked for, or submitted with the survey to tell if it actually made it through on this side, the best I can suggest you do is fill in the form again. If you still have problems submitting the form, please let me know!

Again, thank you for your time!

DJ

Title: Re: Moyamoya patient information survey
Post by 808annie on Feb 23^rd, 2007 at 11:47am

;)

I had received your survey & filled it out... thank you D.J for the opportunity to be able to help out.... your board has been more than invaluable to me & my family in more ways than you'll ever know.

You do a great community service for those who suffer from this funky illness.

God Bless you & yours.

annie