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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Six-Month Checkup http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1210812208 Message started by KTiller on May 14^th, 2008 at 8:43pm

Title: Six-Month Checkup
Post by KTiller on May 14^th, 2008 at 8:43pm

I returned from Stanford yesterday. After a week of testing, I met with Dr. Steinberg and his team. I'm doing GREAT and won't have to return for another 2 1/2 years! Just wanted to share the good news and to tell those who are starting out on this difficult path to keep at it - the results are worth the effort.
Kim

Title: Kim Re: Six-Month Checkup
Post by doubletrouble on May 14^th, 2008 at 10:03pm

Kim , thats great news .I am happy for you ,i cant wait until August to meet you ,Tammy

Title: Re: Six-Month Checkup
Post by Carol Mae on Jun 1^st, 2008 at 10:37pm

Great news Kim. Did Dr. S tell you why you needed to return in 2.5 years? Just wondering.

Look forward to seeing you in Vegas!

Carol

Title: Re: Six-Month Checkup
Post by KTiller on Jun 1^st, 2008 at 11:41pm

Hi Carol,
No, he didn't say. I just assumed that he wanted to check that the grafts were still intact. I tell you though, unless I'm a given a VERY good reason, I won't agree to another angiogram - every time they shot the dye it HURT. Several times my vision blacked and I saw little tiny lights flickering in the blackness. So, I'd just as soon not have another. I'll call to ask, why a recheck in 2 1/2 years and ask if I can skip the next angio. I'll let you know what I'm told when we meet in Las Vegas.
Kim

Title: Re: Six-Month Checkup
Post by Shan on Jun 2^nd, 2008 at 8:40pm

Congrats Kim! ;;D

May I ask what kind of tests you had done to see if the grafts were intact? Was it just the angiogram? Ohh...I don't care for those myself...but I know we need to. :-X

So good to hear the great news!

Take care,
Shan

Title: Re: Six-Month Checkup
Post by LA on Jun 3^rd, 2008 at 11:36am

Kim~~~~

Good going!
Glad it's all working out for you.
I enjoyed your attiude and verv.

Jack and I were in Palo Alto dealing with my moms 'estate'. I didn't check this site as I normally do (we usually try get over to see Jill and whoever wants a mm visit) because my left leg muscles are giving me troubles. I actually went to Stanford Emergency on the 14th!!! Would have liked to meet you.

We're still scheduled to head back to Palo Alto after my MRI here.

Hope moms 'estate' (or my leg) doesn't prevent us from heading your way to visit and meet people.

I am wildly allergic to the dye used in the angiogram. I get horribly swollen (but not my airways!) and itch. The skin on my hands actually festerd.Went to an allegist here at home, and saw the nurse at Stanford MM division (Mary Marcallas -- sp?) so my condition could be recorded... and for help. Was told to avoid angiograms unless absolutely necessary.

Glad that you're doing well.

Linda