I realized that I have a rare disease, BUT i also, know I will have my bad days and my fantastic days. I am not going to let this get me down, I have a wonderful family and two great kids. I know somedays I will cry and wine about it and think why me blah blah blah. But it doesn't matter why, because I do have it, and no amount of crying will change it no amount of anything will change it no matter how badly i want it changed and I know I am getting the best possible care ever. I know what happens to me, is suppose to happen, and god is the controller in my life, he says if i live or die, and I am going to live my life everyday and wake up with hope and knowing I am going to be alright, and if I have a bad day, its okay, we all have bad days, I will love my life and family more and more, and say I love you more everyday, and nothing in life is ever a guarantee, just take whats given and run like heck I have my life my family and I can walk talk type write and think for myself, I just wanted to share this with everyone, because I think I am on the first step to accepting this MoyaMoya, and I am proud of my new found life :) I dont smoke anymore, I take walks, I eat healthier and I even, take more time to spend with my loved ones

Good for you It sounds like you have the right Idea. Think positive and hope for the best! If you ever need us we are always here reading eveni f we do not post!
best of luck,
Amiee

I'm glad to see that your making this such a positive.  Your right in the fact that no amount of crying will change what we have.  But its awesome that your taking the steps your taking.  Your faith can get you through.  I know mine has gotten me here.  I'm due to have the STA/MCA bypass in about a week and a half.  I'm scared and excited.  However this is a situation I have no control over.  I've placed this whole thing in God's hands.  Because honestly...no one else can get me through this but Him.  I've put complete trust that He has lead me to my doctor (Dr. Daniel Barrow @ Emory Med. in Atl., GA - Thank you SC_Girl) and I trust that things will go as smoothly as possible.  God and my family are what's important to me now...above all else.  

Point is, the stance you have taken is a great one.  Live your life, love your family, but MOST importantly...trust in God.  I've stated before...and its starting to become my moto:  With God....Nothing is impossible.  

I'll be praying for you as I ask you to pray for me.  There are a lot of great people here.  People that can all help in one way or another.  It took me a while to come to this website because I simply didnt want to accept what was happening.  But it is.  Lean on God, lean on us...and we'll lean back.  It's all about the support you give and get.  

Take care and God bless...

Attitude is everything.AS I watched my daughter go through her worse times dealing iwth this disease I also looked around us at the children's hospital and saw families laughing and playing and walking through the halls who had no hope whatsoever.We have hope,hope for a wonderful life if we make choose to make so.Hang into that positive attitude it will get you through more than you can imagine.
Mary Grace