Hi everyone
I thought I would start another post, cause for people like me who aren't on here very often, I don't always see older posts.

I have mentioned to a few people before about starting an awareness organization for MM, and came up with the name RAAMM - Raising Awareness about Moya Moya.  I have no clue how to start a non-profit org or where even to begin, but you have to start somewhere.  I even had my niece draw a logo (but I never got it - she is 16 for cryin out loud).  It was supposed to be a Ram with very curly tangled horns - like moya moya arteries.

If anyone has any experience, or even thinks this is worth a chat, lets get something started.  If you think I am out of my mind (literally or figuratively  - feel free to share that as well).  

Also - there are several groups on FaceBook devoted to MM.  Check it out and if you join, let me know so we can be connected as friends.  There are several of us on there.
Cheers and God Bless!
Sandi