I know sometimes i can give really good advice but i can never take any advice. I sometimes am really strong, but lately, i find my self so afraid, i get a small tiny headache and i start freaking out, i lie in bed, and start to remember that day Nov 6th of this year, ( aneurysm rupturing that i didn't even know i had) and i start to freak out and get really scared. Almost thinking i can not take having this disease anymore, i can not take the maybe and what if anymore, i love my life my family, and i choose life family and the lord, but i am finding myself not as strong lately, anyone else have that problem, where they get stuck in a mood where they just sometimes seem they can not pull themselves out?? its a bummer, i don't know right now, i am just kinda in a depression state right now,

amy - first I would like to say that I am so glad you are ok.  I don't know you however, when I heard about your aneurism, I was praying for you.  My son has cp as well as moyamoya and we are having his frst surgery next Monday.  Though I don't have the disease, I feel the same way about my son.  There is always something going on with him.  I used to get depressed all the time wondering about the future (his and mine)  I know things will not get much better for him.  But I am now on anti-depressants as well as praying a lot for strength and have learned to take it one day at a time because no one knows what their future holds.  I trust in the Lord and his plan for me and my family.  I just keep praying for strength.  I hope this helps you and know that you can only take one day at a time as it is given to you and remember no one knows what their future holds.

Linda

Hi Michelle,

You have been through a lot. You are strong, you're a fighter, and a survivor. Don't let this consume you or get you down.

I understand your reaction to any headache simply because of what you have been through. If having a headache, no matter how insignificant, freaks you out, or scares you, talk to your doctor. Somtimes just understanding what is considered ok and not ok can ease the anxiety. Your doctor can tell you if what you are experiencing is something to be concerned about.

Again, don't let this get you down. If you feel depressed, seek answers and help from your doctor.

Hugs,

Lore

Hello,
I know how you feel. My daughter also has an anuerysm due to her Moyamoya. Everytime she gets a headache I get scared thinking that her anuerysm is going to rupture. It's like a ticking time bomb with that in her head. It's really hard to deal with. I think about it every day. She is going to get another arterial angiogram next month to make sure it hasn't grown since the last time she had one. I also always think that her Moyamoya could be spreading to the other side of her brain. I am really thankful for how wonderful she is doing and try to cherish every moment I have with her.  
Lori   [smiley=engel017.gif]

I know exacly how you feel!! I had been having growingly painfull migraines and my meds started to work less and less. I made an appointment with my nurologist since I was so scared. He asked me more about what stresses I have had recently then about my body. He said I was having mine since I was SUPER stressed. I had gotten a premotion, baught my fist house and school was extreemly hard.  If the nex medication he put me on didn't get rid of my headaces he would give me a angio. Well I am doing better. We all go through some tough times, we just have to have our family help us out sometimes.

I hope you feel better don't let it get you down. You also have all of us to help you out. Big HUGS!!!
Becky

hey everyone i go my surgeron on thursday so i will let everyone know what he says and how it goes and when my next angio is, because he said he wanted to get one 6 weeks after or so, i def will update eeveryone when i get back