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Moyamoya Related Topics >> Moyamoya Related Information and Support >> My Mommy Has MM
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Message started by LoveHolyTrinity on Jan 30th, 2009 at 8:45pm

Title: My Mommy Has MM
Post by LoveHolyTrinity on Jan 30th, 2009 at 8:45pm
Hi, I am 13, and my mom has MM. I wanted to know some ways I could help her around the house, because I have a 5 year old brother who is BIG(!!!) trouble. My mom's online name is moody, if you wanted to know...

Title: Re: My Mommy Has MM
Post by tuknits on Feb 1st, 2009 at 7:29pm
I have MM and I am a  mom of two young children.  I think it is lovely that you want to find ways to help your mom.  I think this is a hard question to answer, though.  Each of is affected differently and to a different extent.  I think the best thing you can do is ask your mom or your dad how you can help.  
Does you mom get bad headaches?  If so maybe you can offer to get her a sleep mask (if she has one) to help block out the light which can sometimes make the headaches worse and a glass of water in case she is dehydrated.  Does she get really tired?  Maybe you can try to make a meal or do a load of laundry.  You might be able to help out with your younger brother (if he looks up to you and listens to you).  You might be able to teach him about cleaning up his toys when he is done or anything he might be doing that makes more work for your mom.  You might also want to try doing some special things with him (taking him to the park, playing games, etc.) to help keep him busy and give your mom a break.
These are just a few suggestions, but like I said, ask your mom and dad what you can do that would really make a difference for them.  I am sure that they would be thrilled just to know that you were thinking about it and that you want to help.  Let your mom know how much you love her and support her.  I am sure that would mean more to her than anything you could do.

Title: Re: My Mommy Has MM
Post by Little Luca on Feb 2nd, 2009 at 5:00am
Hey LHT

You are an extremely brave girl facing this with your Mom head-on. Tuknits has probably given you the best advice. Just try to lessen the stress in your Moms life. There is nothing any of us (non medical people) can do to directly help with the moyamoya and it's symptoms, but there is plenty in your Moms everyday life that you can do to make it easier. Whenever possible, just say to her: "Sit and relax Mom, I'll do that."

We're all here for you and your Mom

Mark (Luca's Dad)

Title: Re: My Mommy Has MM
Post by Becky on Feb 2nd, 2009 at 1:08pm
LHT,
You are a wonderful woman. tuknits and Mark both gave the best advise. Help out as much as you can when you can. even the little things like keeping you room clean, or helping with the dishes. Your little borther will come around. If you keep a positive attitude this will help your mom know you are looking after her. if you get discuraged we are here for you!!!
huggs,
Becky

Title: Re: My Mommy Has MM
Post by moody on Feb 21st, 2009 at 11:05am
Hi honey, I didn't believe my eyes went I got back in the site, you was wonderful helper already, I think you are a great daughter that evereone could ask for. Don't worry so much. I love you.

To my friends, she is my daughter, who is very helpful, and take care of her brother since I got sick. Thank you for supporting her. I still deal with headache, and some of little annoying that all, my last check up with surgeon on December is wonderful, just let you all know I'm thinking of the site and people who a walk down of this path with me.

Kieu

Title: Re: My Mommy Has MM
Post by Kath41 on Feb 21st, 2009 at 4:12pm
Dear Kieu,
I think your daughter is wonderful!!  I can relate to your situation, I have three terrific daughters of my own! I know when I was first diagnosed they were very brave for me but scared about the reality of the situation.  When I left for Stanford they made a picture album for me to take with me because that was the longest amount of time I was ever away from my kids and they remained brave throughout it all.  Now that I am 4 years post-op I wish that patience was still there, now they get agravated at me when I ask them if they have homework to many times, short term memory loss!! :D  Seriously, LoveHolyTrinity continue to love your mom and try not to worry to much and your little brother will come around soon enough...if you would like to talk to my girls to see how they handled it you are more than welcome to email us personally, my youngest daughter is 14 so she can probably relate to you and your feelings.  Good luck to you sweetie and just know that we are all here to listen and to help if we can, now go and give your mom a big hug!! [smiley=hug.gif]
Your Friend,
Kathleen

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