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Message started by mjmom on Jan 30th, 2009 at 10:19pm

Title: any difference between "pial synangiosis" and EDAS
Post by mjmom on Jan 30th, 2009 at 10:19pm
Would anyone happen to know if there is a difference between "pial synangiosis" and EDAS?  What exactly is "pial synangiosis"?
Thanks!!

Title: Re: any difference between "pial synangiosis" and EDAS
Post by Becky on Feb 4th, 2009 at 7:17am
mjmom,
Sorry it took so long for someone to respond. I did some resurch it looks like "pial synangiosis" is a type of MoyaMoya(MM). Typicaly the unilateral kind. It seem like it is a doctor word.  EDAS is a surgery that could be done for helping get blood flow back to a "normal" level in MM people. EDAS - indirect bypass -> arteries are laid on the surface of the brain and left to grow.

I would talk to you nuologest or Dr. Steinberg's team.
Here is his contact info:
http://med.stanford.edu/profiles/Gary_Steinberg/

Take care.
Becky

Title: Re: any difference between "pial synangiosis" and EDAS
Post by ter on Feb 4th, 2009 at 12:56pm
Hi mjmom
  I can't get too technical about the difference but i can tell you that my wife just had pial synangiosis done on both sides the end of december at Children's hospital at Boston by DR. Scott.  If you go on there site and search moyamoya Dr. Scott explains much better than I ever could.  The way I understand is that it increases blood flow faster than edas but not as fast as direct bypass.  Check out the site i found it very helpful.  By the way My wife is doing great after having her second surgury dec 30th.  Terry

Title: Re: any difference between "pial synangiosis" and EDAS
Post by Mar on Feb 4th, 2009 at 1:24pm
Hi,

I’m sorry for not responding sooner, but I just read this post today. I have no idea how I missed it, but I did.

Anyway, I think I know the difference. As I understand it they are both “indirect surgical approaches” that create a new blood supply. The difference between them is, with the pial synangiosis, they use a healthy blood vessel from the scalp and move it so it runs under a section of the skull and then it’s stitched to the surface of the brain. With this approach, it does not require severing the tiny artery and then reconnecting it to the brain, like with the EDAS surgical approach, they dissect a scalp artery and then make a small temporary opening in the skull directly beneath the artery. Then the artery is sutured to the surface of the brain and the bone replaced.

With both surgical techniques, the transplanted artery then grows a network of healthy new arteries to create a new blood supply to the brain. They are both the preferred surgical approach for children because of their tiny arteries. You should ask your surgeon as to why a particular technique is being recommended and what the surgical results have been with the particular technique.  

Dr. Scott, at Children’s Hospital in Boston, a pediatric MM specialist prefers the pial synangiosis and says this technique has a significant advantage in his research, especially children, but it may differ for each individual case.

I hope I explained it ok.

Mar

Title: Re: any difference between "pial synangiosis" and EDAS
Post by mjmom on Feb 4th, 2009 at 8:41pm
Thanks to all of you for your very knowledgeable answers!! I am always amazed at how much you all know!  I think that Pial Synangiosis is what my son had at Columbia Pres. by Dr. Neil Feldstein back in 1999.  It can be a bit confusing with all the different surgical options!

Thanks again and I wish you all good health,
Gretchen
mjmom

Title: Re: any difference between "pial synangiosis" and EDAS
Post by elaine on Feb 5th, 2009 at 10:53pm
HELLO EVERYONE,,,,,,

I have a question:::: Has any one ever been told they have very slow flow in there Cardiod Artery ??
For those of you that know me,,,,,,I had my 1 st surgery on New Years Eve. 1998 &  2nd surgery in 2000 :-
I have an appointment on the 13th @ Shands with Dr. Lewis and will be having a CT Angiogram, then see the Dr.,,,,,, I have been  having dizzy spells again and can hear my heart beat in my ear when I lay on it....... :(


Elaine Calvert

Title: Re: any difference between "pial synangiosis" and EDAS
Post by mattsmom on Jan 30th, 2013 at 11:25am
One other difference that I was informed of is that during pial synangiosis they place the artery directly on top of the brain. The brain has many layers of membranes between it & the skull. The pial refers to the very bottom layer & even it is lifted so that NOTHING is between the brain & the bypassed artery. It is believed this helps with the blood vessel growth.

My son had this procedure, at 7, with Dr. Scott, who perfected the procedure in 1999 also. I credit Dr. Scott with the healthy young man who is my 20 year old son today.

Kim

Title: Re: any difference between "pial synangiosis" and EDAS
Post by Heath on Jan 30th, 2013 at 6:11pm
I think there may be some misinformation in some of the older posts in this thread.  Specifically, EDAS (Encephaloduroarteriosynangiosis) doesn't involve severing the artery and reconnecting. [at least not in my experience and understanding]

Just want to point this out, as it might confuse someone who finds this in research.

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