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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> birthmark http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1241570513 Message started by Michele on May 5^th, 2009 at 8:41pm

Title: birthmark
Post by Michele on May 5^th, 2009 at 8:41pm

http://www.divinecaroline.com/article/22111/73466-

how many people that have MM also have a vascular birthmark? Just in my small town I have known several younger people that have had a stroke (no MM dx) and also have a vascular birthmark. I guess I am just curious. I was born with a huge vascular birthmark. This isn't a medical article or anything, just got me thinking about the birthmark again. I will probably wonder about it until the day I know it's proven it is/isn't related in some way! But as always, everyone's opinions are much appreciated! Have a Great Day!
God Bless You All
Michele

Title: Re: birthmark
Post by Becky on May 6^th, 2009 at 12:17pm

I don't have any birthmarks. But my MM is very mild compaired to some.
Becky

Title: Re: birthmark
Post by Shelbi on May 12^th, 2009 at 12:20pm

I am not sure what a vascular birthmark is, but Shelbi has several tan birthmarks. And I had always heard that if you had 5 or more of these birthmarks like hers that it was a sign that there was something going on neurologically.

Tina Peters
Chiari10
Shelbi 12yrs old MM,Chiari Malformation, Syrinx, Basilar Invagination

Title: Re: birthmark
Post by LuckyMe on May 15^th, 2009 at 10:06am

I don't have any birthmark.......but I still have MM.

Title: Re: birthmark
Post by Audge on May 17^th, 2009 at 1:04am

My daughter has NF1 (Neurofibromatosis at birth) and a sign of that is multiple cafe au lait birthmarks of a certain size. She also has a rather large birthmark on her chest. Her brother also has a similar birthmark on his chest but no MM or NF for him.

Title: Re: birthmark
Post by marasmmparents on May 21^st, 2009 at 10:12pm

My daughter Mara has a vascular birthmark on the inside of her thigh. I always wondered if this was related to the Moyamoya considering it is a vascular disease as well. It is something to think about!!

Mandy

Title: Re: birthmark
Post by Michele on May 22^nd, 2009 at 1:59am

Hey thanks everyone for the responses!
Mandy, I was beginning to wonder if I was the only one with the vascular birthmark! As you said, it is considered a vascular disease...and I have always wondered about a possible connection. When I was born my entire left leg was covered with it, to the point my parents were told I was born with a birth defect, but only about 1/4 is now (around my knee). It has been puzzling to me, so I tried to look up MM research to see if there was any connection, but I did not find one. I still wonder if there is some connection, since vascular birthmarks are not that common (as far as I know).
God Bless You All
Michele