Hi,

My 7 year old daughter was just diagnosed after an MRI/MRA yesterday at Children's Mercy in Kansas City. We have been dealing with her symptoms since she was 3 and are very relieved to finally have an answer. But, we still feel so in the dark. We have no idea what to expect and what time frame we are looking at. Her neurologist has suggested a Dr. at Texas Childrens and we are waiting to hear from them. Any suggestion in the mean time?

Thanks!!!