I need some advice please. My daughter (17) was diagnosed with unilateral moyamoya and had left side sta-mca bypass in June '09 in Australia. She's had 4 tia's(?) since Christmas. Similar as to before surgery. Dr's unsure why? Having problems with drs at local hospital, they think it's complex migraines and stress. Of course she's stressed when she can't move her arm or leg and can't talk. And it keeps happening. Each time she has been lucky that the symptoms have resolved without any long term issues. But each time it's taking longer for the symptoms to resolve. She had a follow-up angiogram in Jan and bypass is working well. Can anyone help with some suggestions/advice?  Feeling lost and frustrated.

I understand you perfectly . It's very frustrating pass through all this and to see that the symtoms don't go away ... Paula's neurologist explained us that It's very difficult for a neurologist to diference between a TIA or a seizure, because the symptoms are very similar ....

After surgery, Paula started to have even more episodes that before surgery, but with time (6 months later) they started to decrease, and now, when she has them, they are much more slight ... Paula is on Trileptal (anti-seizure meication). Is you daughter taking some medication? It's very dificult to give an answer, and probably, you will don't find a Dr who tell you what is exactly hapening to your daughter... I understand you because with Paula's symptoms, Drs didn't know the nature (TIAs, seizures, complex migraines .....).

I have the theory that, if surgery is succesful and the brain perfusion is good but symptoms persist, may be they are provoked by the moyamoya vessels that can still be present after surgery (they can decrease but not completly dissapear...., and may be, when there is a vasoconstriction of this vessels, is when you have the symptoms .... I don't know, I'm not a doctor, but I have almost got crazy looking for an answer, perhaps one day we'll find some answer.

You are not alone. Take care. 

Thanks for your reply. My daughter is only on aspirin and Plavix. Doctors don't want to put her on anything else cause they don't really know what's going on.
I get so frustrated when she is taken to emergency at the local hospital and the doctors do not want contact her neurologist and neurosurgeon. Even though  we have a letter from them saying that want to be contacted.
Does anyone else have this problem? If so, what has worked for you. Apart from ringing the specialists directly.
Thanks. It helps to know that you understand. We are all fighting the same battle against Moyamoya!

The ER docs should definately contact the specialists! I had my daughter to the er post surgery and they admitted to me they did not know about Moyamoya. She had  a few TIA's post surgery and we were told to go there if anything happened. Luckily they resolved within 30 min each time, and now she is 7 mnths post surgery and hasn't had any TIA's. She does however still have headaches daily, some days worse than others. Our surgeon and our nuerologist were  contacted each visit.
I do think the baby aspirin and drinking lots of water has helped a lot. She takes no other drugs. When I gave her Tylanol cold medicine, she had bouts of becoming numb all over her body. Now I know better. Best of luck, and I hope she is coping well, its got to be so scary to have those TIA's!
Pam