Hi All,

We have a date for surgery, March 30th. It's all happening pretty fast. Got a call from Teresa at Dr. Steinberg's office on Monday(3/14) night and she said my husband needs surgery right away. I figured it would take weeks to set it up, but by Wednesday, they had him scheduled. When they say now, they mean right now.

We are leaving on Tuesday to fly out there - HUGE THANK YOU TO ANGELFLIGHT.ORG!!! He will have testing Wed-Fri(3/23-3/25), Mon & Tues(3/28-3/29), with surgery on Wednesday(3/30). Will be meeting Dr. Steinberg on Monday, can't wait. So many questions to ask. If all goes well, we should be back home on the 7th.

Still have some minor details to work out. Like how we are going to get from San Jose Airport to Stanford on Tuesday, but I have faith we will get it worked out. Don't like the last minute thing, but can't be helped. This disease is horrible on people who are control freaks! LOL!!!

We are both a little bit anxious, but looking forward to getting it done and over with.

Anyway, we will be staying in the HOME apartments there at Stanford. If anyone has any tips on transportation, things to pack or not to pack, places to avoid or places to go, or anything else, would love to hear them.

Michelle   :)

Hi,
Good luck to your husband and to yourself. You are in great hands with Dr. Stienberg and his amazing team. As far as your trip from San Jose to Palo Alto we rented a shuttle to Palo alto from the San Jose airport then rented a car in palo alto it was a huge savings. You just need to schedule something with a car service before you get there then call them when you land. Prayers are with you both ::)

I also stayed at the home apartments with my husband they are just a short walk from the hospital and if you dont want to walk you can call a shuttle
service at no charge and they will pick you up and drop you off makes it very nice!! Good luck i hope everything turns out great for your husband!!!

Hi Shellanders,

Just wanted you to know that I was thinking of you and your family as the surgery date gets closer.  If you would like someone to talk to I can give you my phone number.

Hillary

yes i ment edas sorry i get on here after work and that happens to be late. and she had that 6 month brain profusion that is what they called it but they dont want to do an angio. said why put her under if it was not needed so they left me wondering alil bit. i was just wanting a comparison of sorts. thanks for the welcome and the info since the post about caffine and then further research i have taken her off caffine she is not happy aboutthe chocolate and tea lol but doing good none the less i just hope i can find a way to get her get her grades up. for any of you that have kids with this do they have probs in school with keeping up and staying focused? i mean she sezs weekly. i have noticed an age regression also she is 12 but alot of the time behaves like she is 8 or 9. i guess is it normal for her whole personality to change ? and i know there is no set norm but just wondering if anyone is going thur this also it is hard to know what to expect next

sorry so posted this in the wrong place lol

omg thank god hope all is well and try not to have a heart attack or hold your breath it will be a long trying day i know it was for me when my daughter was in surgery god bless