Our 7yr old son has been scheduled for surgery for both sides at Children's Hosp Milwaukee on May 16th.  Thank you for all the information and experiences posted.  It helps to have as much of that as possible.  We're newbies to MM.  We learned on Mar 13 he has it and now 2 months later we are going in for surgery. Please pray for him and the medical staff!

Best wishes to your son and your family. My 11 yr old son, was diagnosed on April 9. We are now waiting for his medical records to be sent to Childrens hospital in Boston.

Hi, we are new to this as well.  We got the initial diagnosis in February, had to postpone the angiogram a couple of times as my son (age 9) had gotten a cold.  Angiogram is done, and surgery is scheduled for Friday!