well i have post on here before but my daughter has had the edas surgery and now she is having problems passing out alott and being out for 30 min or more i think they look like tias is there any thing you can do for tias and now her leg get all stuck and stiff for like 3 hr s at time and the er says there is nothing you cna do and wont have the nuro come cause he is the only peds one in alaska
just at the end of my knoleage any help will be blessed and welcomed 

Welcome to the family. You cane to the right place to ask questions.

I am sorry to hear you daughter is not doing well. Those issues look like the EDAS may not have been  enough to give her the blood supply she needs, but I am not a doctor or a MM specialised nurologest.

I have a few questions for you:
Did she see a Moyamoya expert nurologest before the surgery?
Did they do a test that tells them how well the blood was flowing?
Has she had a 3 month post surgery Angio?

I will add her to my prayers. I hope she feels better soon. keep her well hydrated and well rested.

Please keep us posted.
Becky

I hope your child feels better soon.  I dont post much but where are you located?  Was EDAS the only option as opposed to the bypass?  Perhaps you can send your medical file to Stanford.

I am so sorry to hear your story. Do seek professional help with the Neurosurgeon that did your child's surgery. (as well as a second opinion!) It is concerning and certainly frightening to lose consciousness.

I will keep you in my prayers.....keep us posted
Diane