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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> Consult w Dr Scott http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1309474975 Message started by Astrea on Jun 30^th, 2011 at 7:02pm

Title: Consult w Dr Scott
Post by Astrea on Jun 30^th, 2011 at 7:02pm

I saw Dr Scott yesterday as a consult (I am forty so he won't take me as a patient). He was kind and generous with his time (ESP since I won't be a patient). He is recommending that I wait on surgery. He called me "unique" for moyamoya in that I have no symptoms, have never had a stroke, don't even have evidence of lack of blood flow to the brain and have several strong collateral vessels providing additional flow.

He wants me to have a provision test and a SPECT test as a baseline and then yearly MRIs to watch for changes. He is recommending Dr Rose Du at the Brigham should I need surgery in the future and I am waiting for a recommendation for a neurologist at Brigham.

Dr Steinberg at Stanford is recommending surgery.

We are going to go with Dr Scott's recommendation for additional tests and wait a while.

Anyone else have a similar situation?

Title: Re: Consult w Dr Scott
Post by momkaren on Jul 1^st, 2011 at 11:07pm

Sorry, I can't respond about a similar situation. Just want to say Dr. Scott just did surgery on both sides of my sons head on 5/31. He and Dr. Smith are fantastic. I can't imagine him giving out bad advice, sounds like you are doing pretty well right now. I hope you continue to do so well and if it were me, I would probably follow his advice also.

Best wishes to you.

Title: Re: Consult w Dr Scott
Post by nv3 on Jul 2^nd, 2011 at 2:25am

Hi there-

So, were you diagnosed with MoyaMoya? I was first diagnosed with vascultis. After getting many opinions and tests done, it finally was diagnosed with MoyaMoya after seeing Dr. Dodd at Stanford. It seems that Stanford, in the West Coast has the most knowledged in this rare prgoressive disorder. I will go back in a couple of months to see if anything has progressed.

Good luck!
nina

Title: Re: Consult w Dr Scott
Post by Astrea on Jul 2^nd, 2011 at 6:33pm

Yes moyamoya diagnosed by dr steinberg at Stanford (remotely), dr Scott in Boston and the dr who did the angiogram at the Beth Israel hospital on Boston (dr Thomas).

We know several patients of dr Scott (nit for moyamoya though) and everyone agrees he is the best. We felt really confident in his reasoning and he has referred me to a surgeon and neurologist at the Brigham so I'll be following up with them the next few months.