It has been suggested that there are not many who live past their early middle age years (early 40's) stroke-free. Let me further explain...

My research refers to MM patient who have been diagnosed and have not yet had treatment (surgery).

While it is obviously preferable to have surgery done to prolong/even prevent MM in offsetting any strokes; my research suggests that the chances are higher in having a stroke the longer MM goes untreated (surgery).

In my case. I had an EC/IC bypass surgery done (August 2010) but the surgery was unsuccessful. I was 30 years old at the time, now 33. I have now been trying to recover from my surgery, but it has proven to be quite slow. I've had quite a bit of set backs with my recovery. This puts me right back where I began; my MMD still untreated. My stroke-like symptoms have slowly been progressing.

I understand surgery is favorable when done before a stroke and least favorable after having a stroke. So this is where my concern lies, given the progressive nature of MMD; Prompting my question:


What is the oldest someone has lived stroke-free with their MMD untreated (without any brain surgery done)?   


Any replies would be greatly appreciated 

Hey smiley,
In January of 2008 (I was 58) I was diagnosed with Moyamoya and was told it was a children's disease. Apparently I should have had more/severe symptoms before then. At that time I was having speech,memory, thought problems and one week later I had a successful STA-MCA on my left side. At this time I still have not had a stroke (knock on wood) but wonder when the next symptoms will appear. :)

Hello, I was 40 when I had my first stroke. Had EDAS surgery and am now 54 stroke free. Wish you the best.
Russ

I was 57 years old when i was diagnosed at the Cleveland Clinic.  In June of 2010 I had my right side STA-MCA bypass.  In November 2010 (1 week before my 58th birthday) I had my left side STA-MCA bypass.  Dr.s say I have not had a major stroke but probably had TIA's. I still am having headaches (especially with high levels of stress).  I am having headaches due to the changing weather (rain, low pressure). I also experience memory issues, especially short term.