So it's been one year since my dx, which happened by accident. I am completely symptomatic.  I have had two CT scans since the dx and there has been no progression and all looks the same.  Since I'm still asymptomatic, we are waiting another six months and then checking again.

I hate the waiting feeling like there's a bomb in my head waiting to explode, but with a 6 and 4 year old at home I don't want to risk surgery while I have no signs of any symptoms.  So we are in the holding pattern again...

Love my surgeon though, trust her 100% and she has worked with dr. Scott at children's whom we adored and felt 100% sure of (he recommended the surgeon I'm seeing), so we are ok with this course of action for now.