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Moyamoya Related Topics >> Moyamoya Related Information and Support >> Rare Disease Day 28th Feb 2013 http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1361709791 Message started by dmm on Feb 24th, 2013 at 7:43am |
Title: Rare Disease Day 28th Feb 2013 Post by dmm on Feb 24th, 2013 at 7:43am
Just saw on TV, in Australia, that Feb 28th is International Rare Disease day.
Thought it would be good to get Moyamoya recognised. But how? Is there a Moyamoya association? |
Title: Re: Rare Disease Day 28th Feb 2013 Post by srkm5482 on Feb 26th, 2013 at 8:47pm
Uhmmmm, I think we're it???? :D
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Title: Re: Rare Disease Day 28th Feb 2013 Post by ladybug3 on Feb 27th, 2013 at 2:13am
Get Stanford on board next year. I saw the list for the organizations in the US. There are a lot of good ones , including universities and research facilities
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Title: Re: Rare Disease Day 28th Feb 2013 Post by Larry on Feb 28th, 2013 at 8:17am
Just added same on news page.
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