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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Moyamoya Related Topics >> Moyamoya Related Information and Support >> 12 years later...noticeable changes http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1371132507 Message started by kalise on Jun 13^th, 2013 at 10:08am

Title: 12 years later...noticeable changes
Post by kalise on Jun 13^th, 2013 at 10:08am

I first posted here when my then 15 month old Son had just been diagnosed with moyamoya. He is now 13 and a half years. We have been very lucky with Mitchell, other than executive function, Mitchell's strokes didnt leave too much noticeable damage. Our Neuro always told us, as Mitchell got older (teens), damage to the frontal lobes would become more evident in the form of anger, aggression, mood swings, behaviour etc. I am beginning to see all of the above and its breaking my heart. I KNOW this isnt my Son being defiant, there is a major difference between him having a "regular" teen freak out, and episodes I know he cant really control. Today his older Sister told me shes really worried about him. At times, its like Mitchell is a totally different kid to the one we know. I have shed god knows how many tears these last few days. Has anybody else been through any thing similar? Feeling really alone and helpless right now.

Title: Re: 12 years later...noticeable changes
Post by Heath on Jun 13^th, 2013 at 1:58pm

kalise,

i can imagine the feelings this could invite for a parent. rather than attempt to give advice, i just want to let you know that our neurologist has suggested that adolescence might bring about things for us as well, and i've often thought about this

my brother suffered a stroke at age 13, and my mother suffered a stroke about 10 years later. our son suffered his first stroke at age 2, and is now 5 years old and doing very well.

i know that i will have to have the strength, wisdom and understanding to face anything that we encounter, and i am encouraged by your post because i know that you have been there for Mitchell throughout and will continue to be there

we are all in this together in a sense, so don't feel alone

Title: Re: 12 years later...noticeable changes
Post by jalinhopkins on Jun 17^th, 2013 at 11:03pm

My son was just diagnosed with moyamoya February of this year..He had his surgery March 25the 2013... My son is totally different since he had his surgery!!! My son was a total sweetheart and now he is everything you just described in your son!!! It breaks my heart to see him suffer like this and I cant help !! My heart goes out to you and your son as well as your family.... I will keep you all in my prayers...I pray healing will come soon!!!!